The purpose of this phenomenological study is to describe the experience of managing lymphedema in breast cancer survivors. To date, little research designed to describe how lymphedema is managed in breast cancer survivors has been found in the literature.
The specific aims are: (a) to delineate phenomena and component phenomena of the experience of managing lymphedema in breast cancer survivors; (b) to delineate the intentions that reflect each woman's unique experience of managing lymphedema; (c) to identify important factors that promote or impede successful lymphedema management, such as factors related to coping strategies, psychosocial, and cognitive adjustment; (d) to explore the possible impact of age on the experience by comparing the experience of participants under and over the age of 60. A longitudinal design will be used with a three-stage sampling technique. Four semi- structured interviews will be conducted with 12 breast cancer survivors over a 12-month period. Physiological measures of limb fluid volume by circumferential measures, water displacement, and infra-red perometry will be carried out to verify the presence of lymphedema. The Husserlian phenomenological method will be employed to delineate a taxonomy of the phenomena that are the essential structures of the experience of managing lymphedema. Findings will provide an excellent foundation, in later research, for an intervention study focused on lymphedema management in the areas of coping strategies and psychosocial and cognitive adjustment. Thus, the proposed foundational study is a priority for current lymphedema research.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Predoctoral Individual National Research Service Award (F31)
Project #
1F31NR007851-01
Application #
6406753
Study Section
National Institute of Nursing Research Initial Review Group (NRRC)
Program Officer
Hare, Martha L
Project Start
2001-08-20
Project End
Budget Start
2001-08-20
Budget End
2002-08-19
Support Year
1
Fiscal Year
2001
Total Cost
$29,438
Indirect Cost
Name
University of Missouri-Columbia
Department
Type
Schools of Nursing
DUNS #
112205955
City
Columbia
State
MO
Country
United States
Zip Code
65211
Fu, Mei R; Ridner, Sheila H; Hu, Sophia H et al. (2013) Psychosocial impact of lymphedema: a systematic review of literature from 2004 to 2011. Psychooncology 22:1466-84
Fu, Mei R (2010) Cancer survivors' views of lymphoedema management. J Lymphoedema 5:39-48
Fu, Mei Rosemary; Rosedale, Mary (2009) Breast cancer survivors' experiences of lymphedema-related symptoms. J Pain Symptom Manage 38:849-59
Fu, Mei R (2005) Breast cancer survivors' intentions of managing lymphedema. Cancer Nurs 28:446-57; quiz 458-9