Early Autism Spectrum Disorder (ASD) diagnosis improves long-term child development and families'ability to cope with this disorder. Latino children are diagnosed with ASDs at older ages and at the point of more severe symptoms, putting them and their families at significant disadvantage. Interventions addressing family, community, and health care systems factors hold promise for improving access to ASD diagnostic services for minority children. The goal of this project is to develop an evidence-based intervention to reduce ethnic differences in ASD care among Latinos. To accomplish this goal, we will develop a survey of 350 Latino parents of either typically-developing children or children with ASDs, to assess common beliefs about autism in Latino communities, and to assess which community factors, health beliefs, and health care system factors are associated with delays in ASD diagnosis. The survey will be conducted at three sites within the Autism Treatment Network: Oregon Health &Science University in Portland, Oregon;University of Colorado/The Children's Hospital in Denver;and University of Pennsylvania/Children's Hospital of Philadelphia. Based on the barriers found in the survey, we will develop a pilot community-based patient navigator intervention designed to reduce barriers to care. This research will be incorporated into a career development plan that includes increasing the Principal Investigator's knowledge and skills in the areas of autism diagnosis and treatment, mental health disparities, interventional study design, and community-based research. The results of this research will be published in peer-reviewed journals and used as the basis for an NIH-funded proposal to conduct a multi-site test of the intervention designed in this project. Over 120,000 U.S. Latino children have been diagnosed with an ASD, a figure that likely underestimates the true prevalence. This project will help such children achieve earlier diagnosis and better long-term prognosis.

Public Health Relevance

The goal of this project is to develop an evidence-based intervention to improve rates of early diagnosis and treatment of autism spectrum disorders in Latino children. We will achieve this goal through surveying Latino parents to identify barriers to care and then developing a pilot patient navigator intervention designed to reduce the barriers that we identified. This research will be incorporated into a career development plan that includes increasing the Principal Investigator's knowledge and skills in the areas of autism diagnosis and treatment, mental health disparities, interventional study design, and community-based research.

Agency
National Institute of Health (NIH)
Institute
National Institute of Mental Health (NIMH)
Type
Mentored Patient-Oriented Research Career Development Award (K23)
Project #
5K23MH095828-02
Application #
8452602
Study Section
Mental Health Services in MH Specialty Settings (SRSP)
Program Officer
Hill, Lauren D
Project Start
2012-04-05
Project End
2017-03-31
Budget Start
2013-04-01
Budget End
2014-03-31
Support Year
2
Fiscal Year
2013
Total Cost
$179,521
Indirect Cost
$13,298
Name
Oregon Health and Science University
Department
Pediatrics
Type
Schools of Medicine
DUNS #
096997515
City
Portland
State
OR
Country
United States
Zip Code
97239
Zuckerman, Katharine E; Sinche, Brianna; Mejia, Angie et al. (2014) Latino parents' perspectives on barriers to autism diagnosis. Acad Pediatr 14:301-8
Zuckerman, Katharine E; Sinche, Brianna; Cobian, Martiza et al. (2014) Conceptualization of autism in the Latino community and its relationship with early diagnosis. J Dev Behav Pediatr 35:522-32
Zuckerman, Katharine E; Hill, Alison P; Guion, Kimberly et al. (2014) Overweight and obesity: prevalence and correlates in a large clinical sample of children with autism spectrum disorder. J Autism Dev Disord 44:1708-19
Hill, Alison Presmanes; Zuckerman, Katharine E; Hagen, Arlene D et al. (2014) Aggressive Behavior Problems in Children with Autism Spectrum Disorders: Prevalence and Correlates in a Large Clinical Sample. Res Autism Spectr Disord 8:1121-1133
Zuckerman, Katharine E; Mattox, Kimber M; Sinche, Brianna K et al. (2014) Disparities in family health-related internet and email use in the general pediatrics setting. Clin Pediatr (Phila) 53:1295-8
Zuckerman, Katharine E; Lindly, Olivia J; Bethell, Christina D et al. (2014) Family impacts among children with autism spectrum disorder: the role of health care quality. Acad Pediatr 14:398-407