Abstract

The long-term objectives of Project II are to increase our understanding of the nature and scope of the chronic pain problems associated with cerebral palsy and to develop and test interventions designed to address these problems.
The specific aims of Project II are: (1) to ascertain the frequency and characteristics of chronic pain problems experienced by persons with cerebral palsy: and (2) to examine the associations between pain coping responses and subsequent pain and functioning in individuals with cerebral palsy. To accomplish Aim 1, interviews will be performed with a large group of individuals with CP in the Puget Sound area. Interview data will be used to describe the frequency and severity of chronic pain in these individuals. To accomplish Aim 2, 30 individuals who report having chronic pain associated with cerebral palsy will be interviewed in depth, every three months for 1.5 years, concerning the nature of their pain, coping strategies employed to manage pain, and adjustment to chronic pain. Findings from this study will dramatically increase our understanding of the nature and scope of the chronic pain problems that individuals with cerebral palsy experience.

  Funding Agency

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Program Projects (P01)
Project #
1P01HD033988-01
Application #
5212967
Study Section
Project Start
Project End
Budget Start
Budget End
Support Year
1
Fiscal Year
1996
Total Cost
Indirect Cost

  Publications

Miró, Jordi; de la Vega, Rocío; Gertz, Kevin J et al. (2017) The role of perceived family social support and parental solicitous responses in adjustment to bothersome pain in young people with physical disabilities. Disabil Rehabil :1-8
Jensen, Mark P; Tomé-Pires, Catarina; de la Vega, Rocío et al. (2017) What Determines Whether a Pain is Rated as Mild, Moderate, or Severe? The Importance of Pain Beliefs and Pain Interference. Clin J Pain 33:414-421
Miró, Jordi; de la Vega, Rocío; Solé, Ester et al. (2017) Defining mild, moderate, and severe pain in young people with physical disabilities. Disabil Rehabil 39:1131-1135
Miró, Jordi; Solé, Ester; Gertz, Kevin et al. (2017) Pain Beliefs and Quality of Life in Young People With Disabilities and Bothersome Pain. Clin J Pain 33:998-1005
Miró, J; Castarlenas, E; de la Vega, R et al. (2016) Validity of three rating scales for measuring pain intensity in youths with physical disabilities. Eur J Pain 20:130-7
de la Vega, Rocío; Racine, Mélanie; Sánchez-Rodríguez, Elisabet et al. (2016) Psychometric properties of the short form of the Children's Depression Inventory (CDI-S) in young people with physical disabilities. J Psychosom Res 90:57-61
Kratz, Anna L; Ehde, Dawn M; Hanley, Marisol A et al. (2016) Cross-Sectional Examination of the Associations Between Symptoms, Community Integration, and Mental Health in Multiple Sclerosis. Arch Phys Med Rehabil 97:386-94
Raichle, Katherine A; Osborne, Travis L; Jensen, Mark P et al. (2015) Preoperative state anxiety, acute postoperative pain, and analgesic use in persons undergoing lower limb amputation. Clin J Pain 31:699-706
Ehde, Dawn M; Alschuler, Kevin N; Osborne, Travis L et al. (2015) Utilization and patients' perceptions of the effectiveness of pain treatments in multiple sclerosis: A cross-sectional survey. Disabil Health J 8:452-6
Miró, Jordi; Gertz, Kevin J; Carter, Gregory T et al. (2014) Pain location and intensity impacts function in persons with myotonic dystrophy type 1 and facioscapulohumeral dystrophy with chronic pain. Muscle Nerve 49:900-5

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