American Indians (AI) suffer some of the greatest cancer-related health disparities in the United States and are some of the least likely to participate in medical research. Barriers to participation include mistrust of the medical system, limited access to care, and limited culturally-appropriate resources. Effective research programs in AI communities often rely on a collaborative network of community and academic organizations, using community-based participatory research (CBPR) methods. A strong CBPR team based in the AI community and focused on reducing their disproportionate burden of disease has developed over the past four years at the University of Kansas Medical Center, the Program in American Indian Community Health. Our partnership with community organizations has been so successful that we have now formally created an alliance of partners, including tribes, community organizations, academic institutions, and corporations/government agencies, the American Indian Health Research and Education Alliance (AIHREA). We share a long-term goal of reducing health disparities in Al communities through quality participatory research. The primary goals of the Community Engagement Core are to ensure fidelity to the principles of CBPR and to ensure the rigor and validity of the qualitative research conducted through the CPC-AIHD. Our secondary goal is to ensure dissemination of research results, both positive and negative, to the community. The Community Engagement Core will address the following specific aims: 1) To monitor research conducted within the CPC-AIHD for adherence to the principles of CBPR;2) To maintain longitudinal CABs to guide center activities;3) To create a newsletter and an interactive web site for community members and researchers to communicate, disseminate information, and aid in recruitment;4) To hold community research forums annually to bring researchers and community members together;5) To bring 4 high school students, 4 undergraduate college students, and 4 graduate/medical students into research through our youth ambassadors programs in each year;6) To provide rigorous qualitative data collection and analysis for all studies conducted in the AIHREA-CCR;and 7) To provide guidance on qualitative and formative research techniques and study design to all researchers associated with the CPC-AIHD.
The Community Engagement Core for the CPC-AIHD will bring together researchers and community members to address cancer-related health disparities among Al using culturally-appropriate methods and community outreach. AI suffer some of the greatest cancer-related health disparities in the US and are among the least likely to participate in medical research due to historic issues of mistrust. Multiple researchers have identified CBPR as the appropriate method to bring Al into medical research.
|Wick, Jo; Berry, Scott M; Yeh, Hung-Wen et al. (2017) A novel evaluation of optimality for randomized controlled trials. J Biopharm Stat 27:659-672|
|Garrard, Lili; Price, Larry R; Bott, Marjorie J et al. (2016) A novel method for expediting the development of patient-reported outcome measures and an evaluation across several populations. Appl Psychol Meas 40:455-468|
|Choi, Won S; Nazir, Niaman; Pacheco, Christina M et al. (2016) Recruitment and Baseline Characteristics of American Indian Tribal College Students Participating in a Tribal College Tobacco and Behavioral Survey. Nicotine Tob Res 18:1488-93|
|Filippi, Melissa K; Perdue, David G; Hester, Christina et al. (2016) COLORECTAL CANCER SCREENING PRACTICES AMONG THREE AMERICAN INDIAN COMMUNITIES IN MINNESOTA. J Cult Divers 23:21-7|
|Gibbs, Heather D; Pacheco, Christina; Yeh, Hung-Wen et al. (2016) Accuracy of Weight Perception Among American Indian Tribal College Students. Am J Prev Med 51:e139-e144|
|Garrard, Lili; Price, Larry R; Bott, Marjorie J et al. (2015) A novel method for expediting the development of patient-reported outcome measures and an evaluation of its performance via simulation. BMC Med Res Methodol 15:77|
|Pacheco, Joseph A; Pacheco, Christina M; Lewis, Charley et al. (2015) Ensuring healthy American Indian generations for tomorrow through safe and healthy indoor environments. Int J Environ Res Public Health 12:2810-22|
|Yeh, Hung-Wen; Gajewski, Byron J; Perdue, David G et al. (2014) Sorting it Out: Pile Sorting as a Mixed Methodology for Exploring Barriers to Cancer Screening. Qual Quant 48:2569-2587|
|Gajewski, Byron J; Jiang, Yu; Yeh, Hung-Wen et al. (2014) Teaching Confirmatory Factor Analysis to Non-Statisticians: A Case Study for Estimating Composite Reliability of Psychometric Instruments. Case Studies Bus Ind Gov Stat 5:88-101|
|Nazir, Niaman; Bevil, Bambi; Pacheco, Christina M et al. (2014) Characteristics of American Indian light smokers. Addict Behav 39:358-61|
Showing the most recent 10 out of 28 publications