This application seeks to establish a new Edward R. Roybal Center at Johns Hopkins University that will provide visionary leadership and critical infrastructure to stimulate, facilitate, and extend innovative research in the behavioral and socia sciences for older adults. The proposed Johns Hopkins Roybal Center (JHRC) will address two focus areas of the request for applications (RFA-AG-14-004): Focus area 4 - novel methods for analyzing programs affecting older populations;and Focus area 5 - novel programs or practices at homes, workplaces, or firms benefitting older people in specific priority areas. A unifying theme of the JHRC will be an emphasis on better understanding and strengthening the informal support resources of vulnerable older adult populations, particularly those with physical or cognitive impairments. Informal support resources encompass a number of dimensions, including family factors (e.g., marital status, number and location of adult children, caregiver availability);the size, structure, and diversity of one's social network;the amount of contact, support, and engagement achieved through these relationships, and the degree of coordination between informal support resources and more formal care services. As healthcare services and other programs for older adults become more home- and community-based, and less reliant on traditional institutional delivery models, it is vitally important to extend programs and services beyond a patient-centered approach to also include key family members, caregivers, and other aspects of the older adult's social network. A second recurring theme of the JHRC will be on methodological innovations that better advance the evidence-base for how strengthening informal support resources can benefit the health and well-being of older adults. Six initial pilot studies will be supported as part of the JHRC that address the informal support needs of older adults across a diverse set of clinical conditions including dementia, stroke, end stage renal disease, and multiple chronic conditions. Sophisticated technological and methodological advances are essential to the effective translation of social and behavioral research findings into applied practices that make a difference in the lives of older adults with these conditions and their families.
The proposed Roybal Center at Johns Hopkins University will provide visionary leadership and critical infrastructure to stimulate, facilitate, and advance translational research on the informal support resources of vulnerable older adult populations. A unifying theme will be an emphasis on novel methodological approaches that make innovative contributions to the knowledge base for applied interventions.
|Sheehan, Orla C; Kharrazi, Hadi; Carl, Kimberly J et al. (2018) Helping Older Adults Improve Their Medication Experience (HOME) by Addressing Medication Regimen Complexity in Home Healthcare. Home Healthc Now 36:10-19|
|Lin, Frank R (2018) Time for a Top-Down Approach to Hearing Aid Affordability and Accessibility. Am J Public Health 108:166-168|
|Vick, Judith B; Amjad, Halima; Smith, Katherine C et al. (2018) ""Let him speak:"" a descriptive qualitative study of the roles and behaviors of family companions in primary care visits among older adults with cognitive impairment. Int J Geriatr Psychiatry 33:e103-e112|
|Gitlin, Laura N; Cigliana, Jill; Cigliana, Kassie et al. (2017) Supporting Family Caregivers of Persons With Dementia in the Community: Description of the 'Memory Care Home Solutions' Program and Its Impacts. Innov Aging 1:|
|Wolff, Jennifer L; Guan, Yue; Boyd, Cynthia M et al. (2017) Examining the context and helpfulness of family companion contributions to older adults' primary care visits. Patient Educ Couns 100:487-494|
|Marx, Katherine A; Duffort, Naomi; Scerpella, Daniel L et al. (2017) Evidence-based Non-pharmacologic Interventions for Managing Neuropsychiatric Symptoms and Mental Health Issues in Residents in Assisted Living. Seniors Hous Care J 25:71-83|