Informatics and Patient-Centered Technologies (IPCT) Core ABSTRACT Efforts to target the development and testing of self-management interventions to assist adults and children to obtain adequate, good quality sleep is timely and important, especially for those living with a chronic illness. The mission of the CISSM is to design and test innovative and tailored self-management interventions to assist people across the lifespan to sleep better and simultaneously improve health, well-being, and quality of life. The Informatics and Patient-Centered Technologies (IPCT) Core is integral to meeting the Center's mission by fostering innovation and the integration of informatics methods and novel patient-centered technologies into tailored sleep self-management interventions. The IPCT Core will provide CISSM investigators with expertise and resources regarding the collection, maintenance and analysis of common data elements (CDEs) in patient- reported outcomes and self-management, actigraphy, large monitoring data and other complex data sets as well as facilitate the selection of existing and the design of new patient-centered technologies that can be integrated into self-management interventions for sleep deficiency.
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| Ward, Teresa M; Beebe, Dean W; Chen, Maida Lynn et al. (2017) Sleep Disturbances and Neurobehavioral Performance in Juvenile Idiopathic Arthritis. J Rheumatol 44:361-367 |
| Yuwen, Weichao; Lewis, Frances M; Walker, Amy J et al. (2017) Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis. J Pediatr Nurs 37:e23-e29 |
