The vision of our proposal to continue as a center of excellence in cancer communication research is to reduce the burden of cancer for those who suffer unnecessarily for lack of support or information. Our center (a partnership between the Universities of Wisconsin and North Carolina, the National Black Leadership Initiative on Cancer - Midwest, Kaiser Permanente Northwest, and M D Anderson) will include three randomized control trials (Effectiveness, Prolonging Life and Survivorship) and a set of development projects intended to affect Reach: We will: (a) serve low literacy populations with audio and video rather than text, (b) expand ranges of patients served from pre-diagnosis through dignified death or optimal survival, and (c) move ICCS research into colon cancer and activity enhancement. Efficacy and Effectiveness: We will (a) test whether CHESS has the same results in the "effectiveness" context as found in the efficacy context, (b) improve outcomes by testing the efficacy of small devices rather than laptop computers and by enhancing CHESS collaborative nature by using wikis and other co-creation technologies, and (c) further understanding of communication science via Self Determination Theory, and examine the impact of ICCS beyond psychosocial outcomes to new behavioral and clinical outcomes. Adoption, Implementation and Maintenance: We will (a) examine acceptance and feasibility of using ICCS in a large HMO, test the representativeness of the adopters of ICCS and the extent to which implementation follows intent, and (b) gather data on how the ICCS can be fully integrated into the organization to build the business and clinical cases for adoption. The projects will translate research into real world applications, advance the technology of ICCS and knowledge of outcomes and mechanisms of effect;it will also enhance the theory base around which such systems can be developed and tested. This proposal responds to the National Cancer Institute's call for systems that improve personalized patient and family support, address survivorship needs, have real world dissemination, enable efficient healthcare utilization, and improve QOL across the cancer continuum.
This center grant focuses on CHESS, a computer program designed to provide support and information to cancer patients and families. It describes three large research projects: 1) Effectiveness will demonstrate how CHESS works in a real world health care setting by yielding new data on women's use of CHESS, whether CHESS helps women feel better informed and less anxious, and whether CHESS reduces health care costs;2) Prolonging Life will validate an earlier test finding that CHESS helped lung cancer patients live longer;and 3) Survivorship will make CHESS accessible anywhere through cell phones and will test whether CHESS can prevent the return of colon cancer by helping people lead more active lives.
|Yoo, Woohyun; Namkoong, Kang; Choi, Mina et al. (2014) Giving and Receiving Emotional Support Online: Communication Competence as a Moderator of Psychosocial Benefits for Women with Breast Cancer. Comput Human Behav 30:13-22|
|Baker, Timothy B; Gustafson, David H; Shah, Dhavan (2014) How can research keep up with eHealth? Ten strategies for increasing the timeliness and usefulness of eHealth research. J Med Internet Res 16:e36|
|DuBenske, Lori L; Gustafson, David H; Namkoong, Kang et al. (2014) CHESS improves cancer caregivers' burden and mood: results of an eHealth RCT. Health Psychol 33:1261-72|
|Tevaarwerk, Amye J; Wisinski, Kari B; Buhr, Kevin A et al. (2014) Leveraging electronic health record systems to create and provide electronic cancer survivorship care plans: a pilot study. J Oncol Pract 10:e150-9|
|Han, Jeong Yeob; Hou, Jiran; Kim, Eunkyung et al. (2014) Lurking as an active participation process: a longitudinal investigation of engagement with an online cancer support group. Health Commun 29:911-23|
|Yoo, Woohyun; Shah, Dhavan V; Shaw, Bret R et al. (2014) The role of the family environment and computer-mediated social support on breast cancer patients' coping strategies. J Health Commun 19:981-98|
|Yoo, Woohyun; Chih, Ming-Yuan; Kwon, Min-Woo et al. (2013) Predictors of the change in the expression of emotional support within an online breast cancer support group: a longitudinal study. Patient Educ Couns 90:88-95|
|Chih, Ming-Yuan; DuBenske, Lori L; Hawkins, Robert P et al. (2013) Communicating advanced cancer patients' symptoms via the Internet: a pooled analysis of two randomized trials examining caregiver preparedness, physical burden, and negative mood. Palliat Med 27:533-43|
|Wise, Meg; Marchand, Lucille (2013) Living fully in the shadow of mortal time: psychosocial assets in advanced cancer. J Palliat Care 29:76-82|
|Rocque, Gabrielle B; Cleary, James F (2013) Palliative care reduces morbidity and mortality in cancer. Nat Rev Clin Oncol 10:80-9|
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