Our proposed CEER will begin with a set of independent but related primary projects, as did our first CEER. During the course of the CEER's life, however, we are confident that new questions will arise that were not anticipated. Some can be incorporated into the primary project as a logical extension. Other ideas will be more novel or require substantial resources, yet will be important to pursue. Still other ideas will be raised by colleagues who are not involved with the CpG, but who become interested in it and in joining ELSI research. We experienced this during the first five years of our CEER, and this Core will provide a mechanism systematically to identify, evaluate, and fund the most compelling such ideas. A process such as this is needed to help fulfill the vision of CEER centers as being more than the sum of their parts;the idea that a CEER is a network of projects and scholars to foster the development of exciting new ideas.

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Specialized Center (P50)
Project #
5P50HG003391-08
Application #
8450017
Study Section
Special Emphasis Panel (ZHG1-HGR-P)
Project Start
Project End
Budget Start
2013-04-01
Budget End
2014-03-31
Support Year
8
Fiscal Year
2013
Total Cost
$19,934
Indirect Cost
$7,236
Name
Duke University
Department
Type
DUNS #
044387793
City
Durham
State
NC
Country
United States
Zip Code
27705
Michie, Marsha; Kraft, Stephanie A; Minear, Mollie A et al. (2016) Informed decision-making about prenatal cfDNA screening: An assessment of written materials. Ethics Med Public Health 2:362-371
Meredith, Stephanie; Kaposy, Christopher; Miller, Victoria J et al. (2016) Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States. Prenat Diagn 36:714-9
Cook-Deegan, Robert; Vishnubhakat, Saurabh; Bubela, Tania (2016) The mouse that trolled (again). J Law Biosci 3:185-191
Bubela, Tania; Cook-Deegan, Robert (2015) Keeping score, strengthening policy and fighting bad actors over access to research tools. Nat Biotechnol 33:143-7
Angrist, Misha (2015) Start me up: ways to encourage sharing of genomic information with research participants. Nat Rev Genet 16:435-6
Allyse, Megan; Chandrasekharan, Subhashini (2015) Too much, too soon?: Commercial provision of noninvasive prenatal screening for subchromosomal abnormalities and beyond. Genet Med 17:958-61
Burke, Wylie; Appelbaum, Paul; Dame, Lauren et al. (2015) The translational potential of research on the ethical, legal, and social implications of genomics. Genet Med 17:12-20
Minear, Mollie A; Alessi, Stephanie; Allyse, Megan et al. (2015) Noninvasive Prenatal Genetic Testing: Current and Emerging Ethical, Legal, and Social Issues. Annu Rev Genomics Hum Genet 16:369-98
Bubela, Tania; Vishnubhakat, Saurabh; Cook-Deegan, Robert (2015) The Mouse That Trolled: The Long and Tortuous History of a Gene Mutation Patent That Became an Expensive Impediment to Alzheimer's Research. J Law Biosci 2:213-262
Contreras, Jorge L; Rai, Arti K; Torrance, Andrew W (2015) Intellectual property issues and synthetic biology standards. Nat Biotechnol 33:24-5

Showing the most recent 10 out of 88 publications