A historical legacy of exploitation and discrimination is one of the numerous factors contributing to health disparities, resulting in mistrust of the health care system, academics, and research. In addition, researcher cultural competency for working with disadvantaged populations may be limited. Filling these gaps, community engaged research strives to increase research engagement and benefit through developing partnerships characterized by mutual respect, understanding, and trust between researcher and community. The research team and the community share common ground, thus understanding and respecting each other's opinions and needs. Consistent with the unifying themes of the UMass Center for Health Equity Intervention Research (CHEIR), we need innotavite and culturally responsive tools to enhance research literacy among disadvantaged populations and to increase researcher understanding of and ability to work with the community. We propose storytelling as such a tool. Storytelling is grounded two overarching CHEIR themes: (1) developing literacy appropriate tools that are tailored by deep cultural structure and (2) focusing on strategies that do not require direct physician intervention.
Our Specific Aims are to: (1) Advance the field of community engaged science through the development, dissemination and evaluation of innovative, culturally responsive strategies to increase community research literacy;(2) Establish and promote community engaged approaches in the three CHEIR research projects, thus increasing academic investigators'understanding of the community;and (3) Develop new community engaged research in CHEIR and across UMass through a consultation service for disparities researchers and community partners and by contributing to the Mentoring Circles and curriculum opportunities developed by the Research Training/Education Core. Our work will be informed by an Oversight Board comprised of diverse community members, representatives of community organizations that serve diverse populations, and UMass researchers.

Public Health Relevance

The CHEIR Community Engagement core will advance the field of community engaged sciences through the development of an innovative, culturally responsive approach to increase research literacy among racial and ethnic minorities and persons of low SES, and support the community engagement activities of the three CHEIR research projects.

Agency
National Institute of Health (NIH)
Institute
National Institute on Minority Health and Health Disparities (NIMHD)
Type
Comprehensive Center (P60)
Project #
5P60MD006912-03
Application #
8610174
Study Section
Special Emphasis Panel (ZMD1)
Project Start
Project End
Budget Start
2014-02-01
Budget End
2015-01-31
Support Year
3
Fiscal Year
2014
Total Cost
Indirect Cost
City
Worcester
State
MA
Country
United States
Zip Code
01655
Lopez-Cepero, Andrea; Leung, Katherine; Moore Simas, Tiffany et al. (2018) Association Between Obstetric Provider's Advice and Gestational Weight Gain. Matern Child Health J 22:1127-1134
Khubchandani, Jasmine; Soni, Apurv; Fahey, Nisha et al. (2018) Caste matters: perceived discrimination among women in rural India. Arch Womens Ment Health 21:163-170
Abu, Hawa O; Ulbricht, Christine; Ding, Eric et al. (2018) Association of religiosity and spirituality with quality of life in patients with cardiovascular disease: a systematic review. Qual Life Res 27:2777-2797
Upshur, Carole C; Wrighting, Diedra M; Bacigalupe, Gonzalo et al. (2018) The Health Equity Scholars Program: Innovation in the Leaky Pipeline. J Racial Ethn Health Disparities 5:342-350
Hartwell, Stephanie; Allison, Jeroan; Jones, Bonita et al. (2018) Feasibility and Acceptability of Mindfulness for Survivors of Homicide and Their Providers. Explore (NY) 14:66-75
Nobel, Lisa; Jesdale, William M; Tjia, Jennifer et al. (2017) Neighborhood Socioeconomic Status Predicts Health After Hospitalization for Acute Coronary Syndromes: Findings From TRACE-CORE (Transitions, Risks, and Actions in Coronary Events-Center for Outcomes Research and Education). Med Care 55:1008-1016
Lee, Haeok; Kim, Minjin; Allison, Jeroan et al. (2017) Development of a theory-guided storytelling narrative intervention to improve HPV vaccination behavior: Save our daughters from cervical cancer. Appl Nurs Res 34:57-61
Silfee, Valerie J; Haughton, Christina F; Lemon, Stephenie C et al. (2017) Spirituality and Physical Activity and Sedentary Behavior among Latino Men and Women in Massachusetts. Ethn Dis 27:3-10
Soni, Apurv; Fahey, Nisha; Jaffe, Abraham et al. (2017) RAHI-SATHI Indo-U.S. Collaboration: The Evolution of a Trainee-Led Twinning Model in Global Health Into a Multidisciplinary Collaborative Program. Glob Health Sci Pract 5:152-163
Soni, Apurv; Karna, Sunil; Patel, Harshil et al. (2017) Study protocol for Smartphone Monitoring for Atrial fibrillation in Real-Time in India (SMART-India): a community-based screening and referral programme. BMJ Open 7:e017668

Showing the most recent 10 out of 37 publications