Abstract

This application seeks five years of support to continue the investigators' dual site research involving the impacts of life long parenting for adolescent and adult sons or daughters with mental retardation (MR). The focus of the work shifts in this application to a new population, as a sample of 400 families of adolescents and adults with autism will be studied. The proposed investigation will address four central issues: (1) the manifestation of symptoms of autism among adolescents and adults (both cross-sectionally and longitudinally, (2) the effects of the behavioral, communicative, and social functioning of persons with autism on parental well-being (again cross-sectionally and longitudinally), (3) the antecedents and consequences of placement of the person with autism, and (4) the impact of differential diagnostic groups on family well-being.
The fourth aim, families of persons with autism will be compared with two previously collected samples of families: one with a son or daughter with Down syndrome, and one with a son or daughter with schizophrenia. These samples, and the data relating to them, are available from previous or ongoing funded work by the current investigative group.

  Funding Agency

Agency
National Institute of Health (NIH)
Institute
National Institute on Aging (NIA)
Type
Research Project (R01)
Project #
5R01AG008768-15
Application #
6778186
Study Section
Special Emphasis Panel (ZRG1-BBBP-4 (02))
Program Officer
Nielsen, Lisbeth
Project Start
1990-02-01
Project End
2007-03-31
Budget Start
2004-09-01
Budget End
2007-03-31
Support Year
15
Fiscal Year
2004
Total Cost
$331,518
Indirect Cost

  Institution

Name
University of Wisconsin Madison
Department
Pediatrics
Type
Other Domestic Higher Education
DUNS #
161202122
City
Madison
State
WI
Country
United States
Zip Code
53715

  Publications

DaWalt, Leann Smith; Greenberg, Jan S; Mailick, Marsha R (2018) Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents. J Autism Dev Disord 48:251-263
Bishop-Fitzpatrick, Lauren; Smith DaWalt, Leann; Greenberg, Jan S et al. (2017) Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder. Autism Res 10:973-982
Chan, Wai; Smith, Leann E; Hong, Jinkuk et al. (2017) Validating the social responsiveness scale for adults with autism. Autism Res 10:1663-1671
Movaghar, Arezoo; Mailick, Marsha; Sterling, Audra et al. (2017) Automated screening for Fragile X premutation carriers based on linguistic and cognitive computational phenotypes. Sci Rep 7:2674
Chan, Wai; Smith, Leann E; Greenberg, Jan S et al. (2017) Executive Functioning Mediates the Effect of Behavioral Problems on Depression in Mothers of Children With Developmental Disabilities. Am J Intellect Dev Disabil 122:11-24
Bishop-Fitzpatrick, Lauren; Hong, Jinkuk; Smith, Leann E et al. (2016) Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis. J Autism Dev Disord 46:2707-19
Esbensen, A J (2016) Sleep problems and associated comorbidities among adults with Down syndrome. J Intellect Disabil Res 60:68-79
Woodman, Ashley C; Smith, Leann E; Greenberg, Jan S et al. (2016) Contextual Factors Predict Patterns of Change in Functioning over 10 Years Among Adolescents and Adults with Autism Spectrum Disorders. J Autism Dev Disord 46:176-189
Hong, Jinkuk; Bishop-Fitzpatrick, Lauren; Smith, Leann E et al. (2016) Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports. J Autism Dev Disord 46:1368-78
Woodman, Ashley C; Mailick, Marsha R; Greenberg, Jan S (2016) Trajectories of internalizing and externalizing symptoms among adults with autism spectrum disorders. Dev Psychopathol 28:565-81

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