This 4 year longitudinal, urban, multi-method ethnographic study will examine cross cultural healthcare encounters. The study will identify, describe and situate how families contribute to the production of culturally responsive care and the strategies families and practitioners employ to establish commonality, bridge difference, and effectively """"""""partner up."""""""" This is a continuation of Boundary Crossing: A Longitudinal and Ethnographic Study (R01 HD 38878, 2000-2004). It builds upon research conducted with a cohort of African American children with special health care needs, their primary caregivers, extended family networks, and the practitioners who serve them. Although there is an overwhelming body of literature confirming health care disparities for ethnic minorities, there is a striking paucity of strategies to address this significant public health issue. Much research on cultural competence radically underestimates how much work families do to achieve culturally competent care. Longitudinal and learning aspects are under-described, as are their strengths and resources families bring to healthcare encounters. The proposed research is both events centered and longitudinal. We will examine how discrete moments of healthcare encounters produce effects across both contexts and time, influencing developmental trajectories, family life, and health and therapeutic outcomes. The anticipated outcomes of this project are a description and interpretation of: 1) the knowledge and strategies families bring to shape encounters and generate desirable outcomes; 2) how families and practitioners revise their strategies; 3) how practitioners, family, and children develop and draw upon their history of shared endeavors; 4) how practitioners shape intervention to the unique needs and strengths of family and child; 5) how families and practitioners challenge and attempt to disconfirm stereotypes; and 6) the cultural resources practitioners and families draw upon. Findings that will result from this study will facilitate a reconsideration of dominant models of cultural competence and health literacy at multiple policy levels.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Project (R01)
Project #
5R01HD038878-08
Application #
7426487
Study Section
Community Influences on Health Behavior (CIHB)
Program Officer
Quatrano, Louis A
Project Start
2005-07-27
Project End
2011-05-31
Budget Start
2008-06-01
Budget End
2011-05-31
Support Year
8
Fiscal Year
2008
Total Cost
$587,122
Indirect Cost
Name
University of Southern California
Department
Other Health Professions
Type
Schools of Dentistry
DUNS #
072933393
City
Los Angeles
State
CA
Country
United States
Zip Code
90089
Mattingly, Cheryl (2013) Moral Selves and Moral Scenes: Narrative Experiments in Everyday Life. Ethnos 78:301-327
Lawlor, Mary C (2010) Autism and Anthropology? Ethos 38:167-171
Clemente, Ignasi (2009) Progressivity and participation: children's management of parental assistance in paediatric chronic pain encounters. Sociol Health Illn 31:872-8
Mattingly, Cheryl (2009) Reading Medicine: Mind, Body, and Meditation in One Interpretive Community. New Lit Hist 37:563-581
Mattingly, Cheryl (2008) Pocahontas Goes to the Clinic: Popular Culture as Lingua Franca in a Cultural Borderland. Am Anthropol 108:494-501
Mattingly, Cheryl (2008) Reading Minds and Telling Tales in a Cultural Borderland. Ethos 36:136-154
Mattingly, Cheryl; Lutkehaus, Nancy C; Throop, C Jason (2008) Bruner's Search for Meaning: A Conversation between Psychology and Anthropology. Ethos 36:1-28
Neville-Jan, Ann (2005) The problem with prevention: the case of spina bifida. Am J Occup Ther 59:527-39
Lawlor, Mary C (2003) Gazing anew: the shift from a clinical gaze to an ethnographic lens. Am J Occup Ther 57:29-39
Neville-Jan, Ann (2003) Encounters in a world of pain: an autoethnography. Am J Occup Ther 57:88-98

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