In June 2009, the Michigan Department of Community Health formally launched the Michigan BioTrust for Health that will house the residual bloodspots from the last 24 years of newborn screening and make them available for research. When fully implemented, ~ 4 million bloodspots and 12 public health registries (e.g. cancer registries, Medicaid databases, etc.) will be marketable for biomedical and public health research. By linking the bloodspots with registry information, this research could lead to clinical tools and public health interventions that prevent and treat disease. At the same time, the public health system and policy implications of expanded use of newborn screening bloodspots are exigent. The proposed research seeks to assess multiple methods for conducting truly state-wide engagement on an issue that affects citizens throughout the lifecourse in order to assist Michigan and other states in engaging citizens in their research initiatives. The proposed project has three goals: First, it is to examine how different engagement and awareness activities impact knowledge and beliefs about public health biobanks, and the Michigan Biotrust for Health in particular. Second, it is to understand how methods of engagement that operate principally at the individual, community, or state levels compare with one another vis-?-vis knowledge and beliefs and whether they might be integrated to enhance one another. And third, our goal is to understand how context (social, political, cultural, and health system) affects the issues that public health biobanks raise for individuals, communities, states, and other nations. To accomplish these goals, we propose the following specific aims:
Aim 1 : To create a state-wide awareness campaign utilizing three different approaches (online web resources, deliberative juries, and mass media campaigns) through partnerships with the Michigan State University's Extension Service and the University of Michigan's Community Based Public Health network that will reach rural and urban communities. The awareness campaign will emphasize education, engagement, and policy deliberation on public health biobanks.
Aim 2 : To evaluate, through a state-wide survey as well as qualitative interviews, the comparative effectiveness of these activities that operate and interact at the individual, community, and state levels as mechanisms for informing and engaging the public;
and Aim 3 : To develop a comprehensive understanding of the salient social, political, cultural and public health system factors influencing the key issues arising from community engagement at the individual, community, and state levels through contextualized analysis of the knowledge, attitudes, beliefs, and actions observed in Aims 1 and 2. Qualitative interviews with national and international leaders in public health, biobanks, and genetics research, as well as participating Michigan-based community organizations will allow a juxtaposition of public reactions versus institutional perceptions of the trade-offs between collective good and personal risk.

Public Health Relevance

The research in this proposed project will help inform community engagement projects for biobanks in Michigan and across the country through the conduct of a state-wide awareness campaign using a variety of techniques. With education, engagement, policy deliberation, and quantitative and qualitative research activities, we will be able to compare and contrast multiple methods to assess strategies for successful engagement of large populations.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Project (R01)
Project #
5R01HD067264-04
Application #
8597449
Study Section
Social Sciences and Population Studies Study Section (SSPS)
Program Officer
Urv, Tiina K
Project Start
2010-12-20
Project End
2015-11-30
Budget Start
2013-12-01
Budget End
2014-11-30
Support Year
4
Fiscal Year
2014
Total Cost
$546,396
Indirect Cost
$142,113
Name
University of Michigan Ann Arbor
Department
Public Health & Prev Medicine
Type
Schools of Public Health
DUNS #
073133571
City
Ann Arbor
State
MI
Country
United States
Zip Code
48109
Solomon, Stephanie; Mongoven, Ann (2015) Extending the surrogacy analogy: applying the advance directive model to biobanks. Public Health Genomics 18:10-Jan
Thiel, Daniel B; Platt, Jodyn; Platt, Tevah et al. (2015) Testing an online, dynamic consent portal for large population biobank research. Public Health Genomics 18:26-39
Platt, Jodyn; Bollinger, Juli; Dvoskin, Rachel et al. (2014) Public preferences regarding informed consent models for participation in population-based genomic research. Genet Med 16:11-8
Platt, J E; Platt, T; Thiel, D et al. (2013) 'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements. Public Health Genomics 16:145-58
Thiel, Daniel B; Platt, Tevah; Platt, Jodyn et al. (2013) Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health. J Community Genet :