We propose to study the information needs of elders and their adult children who are involved in their care by building a "living laboratory" which we are calling InfoSAGE (Information Sharing Across Generations and Environments). InfoSAGE will allow us to study real-life situations of elders and the challenges for families of communicating, coordinating, and collaborating with complex and costly care environments. Elderly patients may face diminishing cognitive function and may need to transfer aspects of control of their personal health information and decision making to one or more family members. We hypothesize that these elders will still want to retain governance over some of their healthcare information and decision-making, but gradually transition to a shared model. Our goal is gain an understanding of the healthcare information 'ecosystem'that can support the special needs of the independent elder, yet also be capable of supporting an incremental transition to shared management of information, decision making and communication. We will utilize the senior care system at Hebrew Senior Life to longitudinally study patient and family collaborative interactions and information management behaviors in the context of real healthcare decision- making and care tasks. We will evaluate the extent to which InfoSAGE improves the patient's and family's sense of awareness and control over long term care plans as well as optimizes overall resource utilization around care transitions. The outcome of this work will be a robust model of the healthcare information management infrastructure needed to meet the growing needs of elders, their adult children and other caretakers.

Public Health Relevance

We propose to study the information needs of elders and their adult children who are involved in their care and home needs. We will build a living laboratory which we are calling InfoSAGE (Information Sharing Across Generations and Environments) to study real-life situations of elders and the challenges for families of communicating, coordinating, and collaborating with complex and costly care environments. Our study puts elders and their family at the center of information and communication.

Agency
National Institute of Health (NIH)
Institute
Agency for Healthcare Research and Quality (AHRQ)
Type
Research Project (R01)
Project #
1R01HS021495-01A1
Application #
8505934
Study Section
Health Care Technology and Decision Science (HTDS)
Program Officer
Chaney, Kevin J
Project Start
2013-05-15
Project End
2018-02-28
Budget Start
2013-05-15
Budget End
2014-02-28
Support Year
1
Fiscal Year
2013
Total Cost
Indirect Cost
Name
Beth Israel Deaconess Medical Center
Department
Type
DUNS #
071723621
City
Boston
State
MA
Country
United States
Zip Code
02215
Fischer, Shira H; David, Daniel; Crotty, Bradley H et al. (2014) Acceptance and use of health information technology by community-dwelling elders. Int J Med Inform 83:624-35