Establishment of prospective payment systems have resulted in earlier hospital discharge and a shift in part of the care and cost burden from the hospital and third party payors to patients and families. The effects of this shift in burden on families' economic and functional status and patient outcomes is not clear. It is also not clear if this shift in burden is having a differential effect on families according to their income. The purpose of this study is to provide beginning information on family economic and functional status in families with very low birthweight infants (<- 1500 grams) and a comparison group of families of LBW infants (1500-2500 grams). Specifically, the study will attempt to answer the following questions: 1.What are the changes in family employment and financial status (changes in pattern or type of family employment; percentage of family income used to care for the infant; changes in family income) for the first 6 months post infant hospital discharge in families with varying levels of income? 2.What are the changes in family functional status and composition for the first 6 months post infant hospital discharge in families with varying levels of income? 3.What are the differences in infant outcomes (mortality, morbidity, growth and development, followup care and immunization status) for the first 6 months post infant hospital discharge in families with varying levels of income? The sample will consist of 98 families of VLBW infants and 98 families of LBW infants. Data will be analyzed using repeated measures analyses of covariance. Understanding the family care and cost burden is necessary to target interventions to achieve better functional outcomes for LBW and VLBW infants and their families.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Research Project (R01)
Project #
5R01NR002085-03
Application #
3392029
Study Section
Nursing Research Study Section (NURS)
Project Start
1990-06-01
Project End
1994-05-31
Budget Start
1992-06-01
Budget End
1994-05-31
Support Year
3
Fiscal Year
1992
Total Cost
Indirect Cost
Name
University of Pennsylvania
Department
Type
Schools of Nursing
DUNS #
042250712
City
Philadelphia
State
PA
Country
United States
Zip Code
19104
Gennaro, S; York, R; Dunphy, P (1998) Vulnerable infants: kinship care and health. Pediatr Nurs 24:119-25
Medoff-Cooper, B; Gennaro, S (1996) The correlation of sucking behaviors and Bayley Scales of Infant Development at six months of age in VLBW infants. Nurs Res 45:291-6
Gennaro, S (1996) Family response to the low birth weight infant. Nurs Clin North Am 31:341-50
Gennaro, S (1996) Leave and employment in families of preterm low birthweight infants. Image J Nurs Sch 28:193-8
Gennaro, S; Klein, A; Miranda, L (1992) Health policy dilemmas related to high technology infertility services. Image J Nurs Sch 24:191-4