This application is to support the National PKU Alliance's third and fourth national conference and focusing on the day long Scientific Exchange. The goal of the 2014 &2016 National Conferences is to bring together researchers, clinicians, and individuals and families with phenylketonuria to improve lives through medical education, support and research. The goal of the Pre-Conference Scientific Exchange is to foster international collaboration among 15 invited researchers. Current gaps in treatment options, new medical advancements and research for a cure will be evaluated and discussed. The two co-chairs of the Scientific Exchange will present an overview of discussion and actions agreed upon during the larger conference. Funding is requested to assist with the implementation of the Scientific Exchange portion of the overall conference.

Public Health Relevance

It is relevant for the National PKU Alliance to host National Conferences and the newly created Scientific Exchange because they are the only regularly occurring national conference or meeting devoted solely to phenylketonuria. The goal of the 2014 &2016 National Conferences is to bring together researchers, clinicians, and individuals and families with phenylketonuria to improve lives through medical education, support and research. The goal of the Pre-Conference Scientific Exchange is to foster international collaboration among 15 invited researchers.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Conference (R13)
Project #
1R13HD078102-01
Application #
8597615
Study Section
Pediatrics Subcommittee (CHHD)
Program Officer
Oster-Granite, Mary Lou
Project Start
2013-09-25
Project End
2014-08-31
Budget Start
2013-09-25
Budget End
2014-08-31
Support Year
1
Fiscal Year
2013
Total Cost
$12,000
Indirect Cost
Name
National Pku Alliance
Department
Type
DUNS #
968939640
City
Toamahawk
State
WI
Country
United States
Zip Code
54487