Traumatic brain injury (TBI) is the most common cause of death from trauma in children and adolescents and one of the most common causes of acquired disability. Rehabilitation has been viewed as critical to achieving optimal recovery after serious trauma, especially serious TBI. However, there has been limited progress on determining how the organization of rehabilitation care and how the different processes of care are related to functional outcome, especially in children and adolescents. A critical barrier has been the lack of standardized measurement of the organization and processes of care and limited availability of valid measurement criteria for care in the inpatient rehabilitation of injured patients. In this application, we will identify and measure the structure and processes of care in inpatient rehabilitation facilities for pediatric patients with TBI, and examine the variability in these dimensions across rehabilitation facilities and pediatric TBI patients. We will (1) develop a system for measuring the structure and processes of care received by pediatric TBI patients during inpatient rehabilitation. This will be done through a systematic review of the literature and a Delphi process with an expert panel. (2) Evaluate and test a data collection instrument that can be used to collect information on the structure/ organization and processes of care for pediatric inpatient rehabilitation. (3) Use these instruments to examine variations in the structure/ organization of rehabilitation facilities and in the processes of rehabilitation care for pediatric patients with TBI across the US. The long term goal of this study is to deliver optimal care to injured children so that they can attain the best possible outcomes after serious trauma. This proposed project is an essential step in reducing variations in care, and determining which care results in optimal outcomes. Public Health Relevance: The long term goal of this study is to deliver optimal care to injured children so that they can attain the best possible outcomes after serious trauma. This proposed project is an essential step in reducing variations in care, and determining which care results in optimal outcomes.

Public Health Relevance

The long term goal of this study is to deliver optimal care to injured children so that they can attain the best possible outcomes after serious trauma. This proposed project is an essential step in reducing variations in care, and determining which care results in optimal outcomes.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Exploratory/Developmental Grants (R21)
Project #
5R21HD059049-02
Application #
7822778
Study Section
Health Services Organization and Delivery Study Section (HSOD)
Program Officer
Nicholson, Carol E
Project Start
2009-05-01
Project End
2011-10-30
Budget Start
2010-05-01
Budget End
2011-10-30
Support Year
2
Fiscal Year
2010
Total Cost
$235,094
Indirect Cost
Name
University of Washington
Department
Pediatrics
Type
Schools of Medicine
DUNS #
605799469
City
Seattle
State
WA
Country
United States
Zip Code
98195
Ennis, Stephanie K; Jaffe, Kenneth M; Mangione-Smith, Rita et al. (2014) Rehabilitation following pediatric traumatic brain injury: variability in adherence to psychosocial quality-of-care indicators. J Head Trauma Rehabil 29:208-16
Ennis, Stephanie K; Rivara, Frederick P; Mangione-Smith, Rita et al. (2013) Variations in the quality of inpatient rehabilitation care to facilitate school re-entry and cognitive and communication function for children with TBI. Brain Inj 27:179-88
Rivara, Frederick P; Ennis, Stephanie K; Mangione-Smith, Rita et al. (2012) Variation in adherence to new quality-of-care indicators for the acute rehabilitation of children with traumatic brain injury. Arch Phys Med Rehabil 93:1371-6
Zumsteg, Jennifer M; Ennis, Stephanie K; Jaffe, Kenneth M et al. (2012) Quality of care indicators for the structure and organization of inpatient rehabilitation care of children with traumatic brain injury. Arch Phys Med Rehabil 93:386-93.e1
Rivara, Frederick P; Ennis, Stephanie K; Mangione-Smith, Rita et al. (2012) Quality of care indicators for the rehabilitation of children with traumatic brain injury. Arch Phys Med Rehabil 93:381-5.e9