The muscular dystrophies are the heterogeneous group of inherited muscular disorders characterized by muscle wasting and weakness, and are affecting both children and adults. The worldwide prevalence of inherited neuromuscular diseases estimated in a review study was of 28.6/100,000 and 33.3/100,000 if rarer disorders are included. As a group, these disorders, covers a considerable proportion of patients with chronic disease, however, recent studies of prevalence of the muscular dystrophies in the United States are lacking. This project will conduct population-based surveillance and longitudinal follow-up of individuals with muscular dystrophies and neuromuscular disorders using the methods from the Muscular Dystrophy surveillance Tracking and Research Network (MDSTARnet). This will be used for public health research to examine prevalence, survival, health care services and disparities in care.

Public Health Relevance

Using the methods of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet), including case ascertainment and longitudinal follow up, this project will seek to characterize the population of individuals who have a variety of muscular dystrophies and neuromuscular disorders.

Agency
National Institute of Health (NIH)
Type
Research Project--Cooperative Agreements (U01)
Project #
1U01DD001123-01
Application #
8815408
Study Section
Special Emphasis Panel (ZDD1)
Project Start
Project End
Budget Start
Budget End
Support Year
1
Fiscal Year
2014
Total Cost
Indirect Cost
Name
Center of Environmental Health
Department
Type
DUNS #
City
Menands
State
NY
Country
United States
Zip Code
12204