The World Trade Center Health Registry (WTCHR), the largest post-disaster exposure health registry in U.S. history, is following a diverse cohort of 71,437 directly affected people who performed 9/11-related rescue/recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The goals are to identify the long-term physical and mental health effects of the 9/11 WTC disaster;disseminate findings and recommendations to enrollees and others exposed, the public, and the scientific community;share information about 9/11-related resources and services;and inform healthcare policy and disaster response planning.
Specific aims are to: 1) Expand knowledge about the long-term health effects of 9/11 by continuing the WTCHR research program;2) Conduct community activities to respond to the physical and mental health concerns and specific healthcare needs of enrollees and others exposed to 9/11;and 3) Maintain the Registry as a valuable public health resource for future research.
Aim 1 entails conducting priority epidemiological analyses using data from the baseline (2003-04) and follow-up (2006-08) surveys, including analyses to assess risk factors for the development or persistence of serious respiratory and mental health conditions over time;developing and conducting a second follow-up survey of all enrollees using multiple survey modes (paper, web and telephone) to ascertain the health status and 9/11-related healthcare needs of the cohort ~10 years after 9/11; matching with vital records, cancer registries, and the national death certificate system for cancer and mortality assessments;and investigating other potential emerging health conditions through public health surveillance, medical record review and follow-up case-control studies. The WTCHR will also facilitate independent and collaborative 9/11-related research by providing qualified external researchers with de-identified data and access to enrollee subgroups for re

Public Health Relevance

The World Trade Center (WTC) Health Registry contributes to public health by identifying the health effects of the 9/11 disaster and healthcare needs among people who performed rescue and recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The Registry shares its health findings and recommendations with the 71,000 enrollees, the public, scientists, policy makers, and doctors and others who may treat people affected by 9/11. The Registry also shares information on 9/11- related services and resources and offers referrals to enrollees with healthcare needs.

National Institute of Health (NIH)
National Institute for Occupational Safety and Health (NIOSH)
Special Cooperative Investigations/Assessment of Control/Prevention Methods (U50)
Project #
Application #
Study Section
Special Emphasis Panel (ZOH1-GGB (50))
Program Officer
Fleming, Roy M
Project Start
Project End
Budget Start
Budget End
Support Year
Fiscal Year
Total Cost
Indirect Cost
New York City Health/Mental Hygiene
New York
United States
Zip Code
Alper, Howard E; Yu, Shengchao; Stellman, Steven D et al. (2017) Injury, intense dust exposure, and chronic disease among survivors of the World Trade Center terrorist attacks of September 11, 2001. Inj Epidemiol 4:17
Gargano, Lisa M; Thomas, Pauline A; Stellman, Steven D (2017) Asthma control in adolescents 10 to 11 y after exposure to the World Trade Center disaster. Pediatr Res 81:43-50
Boffetta, Paolo; Zeig-Owens, Rachel; Wallenstein, Sylvan et al. (2017) Response to Soskolne [2017]. Am J Ind Med 60:512
Li, Jiehui; Zweig, Kimberly Caramanica; Brackbill, Robert M et al. (2017) Comorbidity amplifies the effects of post-9/11 posttraumatic stress disorder trajectories on health-related quality of life. Qual Life Res :
Jordan, Hannah T; Friedman, Stephen M; Reibman, Joan et al. (2017) Risk factors for persistence of lower respiratory symptoms among community members exposed to the 2001 World Trade Center terrorist attacks. Occup Environ Med 74:449-455
Gargano, Lisa M; Locke, Sean; Brackbill, Robert M (2017) Parent Physical and Mental Health Comorbidity and Adolescent Behavior. Int J Emerg Ment Health 19:
Yu, Shengchao; Alper, Howard E; Nguyen, Angela-Maithy et al. (2017) The effectiveness of a monetary incentive offer on survey response rates and response completeness in a longitudinal study. BMC Med Res Methodol 17:77
Cone, James E; Osahan, Sukhminder; Ekenga, Christine C et al. (2016) Asthma among Staten Island fresh kills landfill and barge workers following the September 11, 2001 World Trade Center terrorist attacks. Am J Ind Med 59:795-804
Friedman, Stephen M; Farfel, Mark R; Maslow, Carey et al. (2016) Risk factors for and consequences of persistent lower respiratory symptoms among World Trade Center Health Registrants 10?years after the disaster. Occup Environ Med 73:676-84
Li, Jiehui; Cone, James E; Alt, Abigail K et al. (2016) Performance of Self-Report to Establish Cancer Diagnoses in Disaster Responders and Survivors, World Trade Center Health Registry, New York, 2001-2007. Public Health Rep 131:420-9

Showing the most recent 10 out of 56 publications