The World Trade Center Health Registry (WTCHR), the largest post-disaster exposure health registry in U.S. history, is following a diverse cohort of 71,437 directly affected people who performed 9/11-related rescue/recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The goals are to identify the long-term physical and mental health effects of the 9/11 WTC disaster;disseminate findings and recommendations to enrollees and others exposed, the public, and the scientific community;share information about 9/11-related resources and services;and inform healthcare policy and disaster response planning.
Specific aims are to: 1) Expand knowledge about the long-term health effects of 9/11 by continuing the WTCHR research program;2) Conduct community activities to respond to the physical and mental health concerns and specific healthcare needs of enrollees and others exposed to 9/11;and 3) Maintain the Registry as a valuable public health resource for future research.
Aim 1 entails conducting priority epidemiological analyses using data from the baseline (2003-04) and follow-up (2006-08) surveys, including analyses to assess risk factors for the development or persistence of serious respiratory and mental health conditions over time;developing and conducting a second follow-up survey of all enrollees using multiple survey modes (paper, web and telephone) to ascertain the health status and 9/11-related healthcare needs of the cohort ~10 years after 9/11; matching with vital records, cancer registries, and the national death certificate system for cancer and mortality assessments;and investigating other potential emerging health conditions through public health surveillance, medical record review and follow-up case-control studies. The WTCHR will also facilitate independent and collaborative 9/11-related research by providing qualified external researchers with de-identified data and access to enrollee subgroups for re

Public Health Relevance

The World Trade Center (WTC) Health Registry contributes to public health by identifying the health effects of the 9/11 disaster and healthcare needs among people who performed rescue and recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The Registry shares its health findings and recommendations with the 71,000 enrollees, the public, scientists, policy makers, and doctors and others who may treat people affected by 9/11. The Registry also shares information on 9/11- related services and resources and offers referrals to enrollees with healthcare needs.

Agency
National Institute of Health (NIH)
Institute
National Institute for Occupational Safety and Health (NIOSH)
Type
Special Cooperative Investigations/Assessment of Control/Prevention Methods (U50)
Project #
3U50OH009739-02S1
Application #
8188458
Study Section
Special Emphasis Panel (ZOH1-GGB (50))
Program Officer
Fleming, Roy M
Project Start
2009-04-30
Project End
2012-04-29
Budget Start
2010-04-30
Budget End
2011-04-29
Support Year
2
Fiscal Year
2011
Total Cost
$3,293,581
Indirect Cost
Name
New York City Health/Mental Hygiene
Department
Type
DUNS #
083489737
City
New York
State
NY
Country
United States
Zip Code
10013
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Li, Jiehui; Cone, James E; Alt, Abigail K et al. (2016) Performance of Self-Report to Establish Cancer Diagnoses in Disaster Responders and Survivors, World Trade Center Health Registry, New York, 2001-2007. Public Health Rep 131:420-9

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