This proposed Technology Center (PTC) for the Patient-Reported Outcomes Measurement Information System (PROMIS) will provide and manage a secure, customizable data collection, management, and reporting system (Assessment Center);serve as a cost-effective, efficient technological resource for the PROMIS network;conduct outreach efforts through publications, presentations, and educational tools to increase the research community's interest in the PROMIS measures and Assessment Center as a platform for data collection;and work collaboratively with the PROMIS network to create a sustained public-private partnership. Our team successfully developed Assessment Center one year ahead of schedule with features beyond NIH requirements during previous PROMIS funding. Additional features identified through the PROMIS Network, current users, and the NIH such as Interactive Voice Response, a hand-held data collection modality, increased real-time reporting of responses, improved tracking of participants in longitudinal studies, and new computerized adaptive testing (CAT) algorithms will be implemented. We will provide computer-based testing platforms for the validation and item bank development projects anticipated in the next PROMIS funding cycle. We will continue to support the 700 current investigators who are already using Assessment Center, as well as new users, through the development and provision of printed, online interactive and in-person training as well as providing support via a toll-free telephone number and email. The scientific strength of our outcomes investigators, psychometricians, software developers, database managers, and communications specialists and our track record of interdisciplinary and inter-institutional collaboration uniquely equip our proposed PTC to accomplish and extend our contribution beyond enabling online data collection in multi-site studies, to ensure the success of the PROMIS initiative.

Public Health Relevance

As the PROMIS Technology Center, we will further develop and improve Assessment Center, an online software application that allows a researcher to establish a study-specific website for data collection. We will aid the network of PROMIS investigators in creating and using computer-based data collection systems. We will also provide technical support and education for the broader scientific community about PROMIS and Assessment Center.

Agency
National Institute of Health (NIH)
Institute
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Type
Specialized Center--Cooperative Agreements (U54)
Project #
3U54AR057943-04S3
Application #
8711648
Study Section
Special Emphasis Panel (ZRG1-RPHB-A (53))
Program Officer
Serrate-Sztein, Susana
Project Start
2009-09-30
Project End
2014-07-31
Budget Start
2012-08-01
Budget End
2014-07-31
Support Year
4
Fiscal Year
2013
Total Cost
$299,000
Indirect Cost
$105,472
Name
Northwestern University at Chicago
Department
Public Health & Prev Medicine
Type
Schools of Medicine
DUNS #
005436803
City
Chicago
State
IL
Country
United States
Zip Code
60611
Pilkonis, Paul A; Yu, Lan; Dodds, Nathan E et al. (2014) Validation of the depression item bank from the Patient-Reported Outcomes Measurement Information System (PROMIS) in a three-month observational study. J Psychiatr Res 56:112-9
Tucker, Carole A; Bevans, Katherine B; Teneralli, Rachel E et al. (2014) Self-reported pediatric measures of physical activity, sedentary behavior, and strength impact for PROMIS: conceptual framework. Pediatr Phys Ther 26:376-84
Fries, James F; Lingala, Bharathi; Siemons, Liseth et al. (2014) Extending the floor and the ceiling for assessment of physical function. Arthritis Rheumatol 66:1378-87
Junghaenel, Doerte U; Schneider, Stefan; Stone, Arthur A et al. (2014) Ecological validity and clinical utility of Patient-Reported Outcomes Measurement Information System (PROMIS®) instruments for detecting premenstrual symptoms of depression, anger, and fatigue. J Psychosom Res 76:300-6
Ravens-Sieberer, Ulrike; Devine, Janine; Bevans, Katherine et al. (2014) Subjective well-being measures for children were developed within the PROMIS project: presentation of first results. J Clin Epidemiol 67:207-18
Tucker, Carole A; Bevans, Katherine B; Teneralli, Rachel E et al. (2014) Self-reported pediatric measures of physical activity, sedentary behavior, and strength impact for PROMIS: item development. Pediatr Phys Ther 26:385-92
Buckner, Tyler W; Wang, Jichuan; DeWalt, Darren A et al. (2014) Patterns of symptoms and functional impairments in children with cancer. Pediatr Blood Cancer 61:1282-8
Menard, Johanna C; Hinds, Pamela S; Jacobs, Shana S et al. (2014) Feasibility and acceptability of the patient-reported outcomes measurement information system measures in children and adolescents in active cancer treatment and survivorship. Cancer Nurs 37:66-74
Lyon, Debra; McCain, Nancy; Elswick, R K et al. (2014) Biobehavioral examination of fatigue across populations: report from a P30 Center of Excellence. Nurs Outlook 62:322-31
Forrest, Christopher B; Bevans, Katherine B; Pratiwadi, Ramya et al. (2014) Development of the PROMIS ® pediatric global health (PGH-7) measure. Qual Life Res 23:1221-31

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