I. African American recruitment into health research. The participation of all underrepresented groups in health research is a critical. Some note it to be the link between innovation and improvements in health. A series of national inifiafives have addressed this issue, beginning with the NIH Revitalization Act of 1993, which requires applicants of federal research funding to provide a strategy for inclusion of women and minorities Into clinical trials (140). Despite our best efforts, racial/ethnic minorities remain underrepresented in health research. Between 1993 and 2002, the budget of the NCI doubled, and clinical trial accrual increased (146). However, only 2.5% of cancer patients are enrolled into trials and many subgroups are underrepresented including AA men and individuals of low socioeconomic status (SES) (147). This lack of diversity contributes to inequitable distribution of benefits and risks of trial participation (which some argue is a component of state-of-the-art cancer care) (148). Racial differences in access to care contribute to disparities in cancer mortality;however, these disparities are attenuated when all racial/ethnic groups receive similar cancer treatment for same stage disease (i49,150). Many studies have found it more difficult to recruit AA men into health research studies (144,15i-i53). Various strategies have been utilized with mixed results including recruiting AA men in barber shops (154-156) and in faith-based institutions (145). While many studies investigating minority participation have focused solely on the efficacy of the recruitment methodology, at least one study suggests that characteristics of the study design may be more influential in affecfing an individual's decision to participate (157).

Agency
National Institute of Health (NIH)
Institute
National Cancer Institute (NCI)
Type
Specialized Center--Cooperative Agreements (U54)
Project #
5U54CA153460-04
Application #
8540839
Study Section
Special Emphasis Panel (ZCA1-PCRB-G)
Project Start
Project End
Budget Start
2013-09-01
Budget End
2014-08-31
Support Year
4
Fiscal Year
2013
Total Cost
$56,259
Indirect Cost
Name
Washington University
Department
Type
DUNS #
068552207
City
Saint Louis
State
MO
Country
United States
Zip Code
63130
Connors, Shahnjayla K; Goodman, Melody S; Noel, Lailea et al. (2015) Breast cancer treatment among African American women in north St. Louis, Missouri. J Urban Health 92:67-82
Hartz, Sarah M; Olfson, Emily; Culverhouse, Robert et al. (2015) Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change. Genet Med 17:374-9
Thompson, Vetta L Sanders; Drake, Bettina; James, Aimee S et al. (2015) A Community Coalition to Address Cancer Disparities: Transitions, Successes and Challenges. J Cancer Educ 30:616-22
Johnson, Kimberly J; Gehlert, Sarah (2014) Return of Results from Genomic Sequencing: A Policy Discussion of Secondary Findings for Cancer Predisposition. J Cancer Policy 2:75-80
Griffey, Richard T; Kennedy, Sarah K; D'Agostino McGowan, Lucy et al. (2014) Is low health literacy associated with increased emergency department utilization and recidivism? Acad Emerg Med 21:1109-15
Boeke, Caroline E; Tamimi, Rulla M; Berkey, Catherine S et al. (2014) Adolescent carotenoid intake and benign breast disease. Pediatrics 133:e1292-8
Caito, Nikki; Hood, Sula; Thompson, Vetta L Sanders (2014) Discussing cancer: communication with African Americans. Soc Work Health Care 53:519-31
Morgan, Tamandra; Schmidt, Johanna; Haakonsen, Christy et al. (2014) Using the internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011. JMIR Res Protoc 3:e10
Gehlert, Sarah (2014) Forging an integrated agenda for primary cancer prevention during midlife. Am J Prev Med 46:S104-9
Liu, Ying; Colditz, Graham A; Gehlert, Sarah et al. (2014) Racial disparities in risk of second breast tumors after ductal carcinoma in situ. Breast Cancer Res Treat 148:163-73

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