Researchers have an obligation to inform participants in research of the risks of harm to which they may be exposed as well as of any potential benefits, and to do so in ways that facilitate comprehension of the information presented. This project uses laboratory research, Web-based experiments, tests of informed consent statements with representative samples of the population, and a validation survey to answer the questions such as the following: What risk of disclosure is the public willing to accept? Is disclosure of some kinds of information considered more harmful than others? Are some intruders into the data perceived as more harmful than others? Do people perceive relationships between expected risk of harm on the one hand, and magnitude of harm and likelihood of disclosure on the other, in a manner consistent with the mathematical implications of those terms? How can researchers accurately inform participants about disclosure risks without unnecessarily deterring their participation? Our formulation of these research questions will be guided by the findings of the Project investigating statistical disclosure risks and limitations.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Program Projects (P01)
Project #
5P01HD045753-02
Application #
7062918
Study Section
Pediatrics Subcommittee (CHHD)
Project Start
Project End
Budget Start
2005-01-01
Budget End
2005-12-31
Support Year
2
Fiscal Year
2005
Total Cost
$33,272
Indirect Cost
Name
University of Michigan Ann Arbor
Department
Type
DUNS #
073133571
City
Ann Arbor
State
MI
Country
United States
Zip Code
48109
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