This project will continue a longitudinal study of family adaptation to children who exhibited significant developmental delays (DD) in preschool. It will determine if early delay predicts subsequent difficulties, including mental retardation, learning disabilities, behavior problems, special education placement, and family adjustment problems. The project will: (1) track development of delayed children from preschool to preadolescence; and (2) analyze ecological factors and family adaptation processes associated with more effective family functioning and better child outcomes in middle childhood and preadolescence (child ages 10/11 and 12/13). As the children enter middle childhood, the project will explore the impact of school experiences on family ecology and adaptation, as well as on child developmental outcomes. The study will compare the relative predictive power of prior child status, school experience, and family adaptation as influences on child and family outcomes (child ages 10/11 and 12/13). Families of DD children will be contrasted to two other samples (Latino and Euro-American families without DD children) in which families also are actively adapting to their child, to test hypotheses regarding the general influence of special adaptations (voluntary; or involuntary, DD-related or not) on family functioning. Another long term objective is to define family strengths and capacities using a theory and research-based model in order to meet PL 99-457's standards of assessment and intervention planning for DD children and their families.
The specific aims i nclude: (1) determining the predectors of cognitive, academic, behavioral, and social competence outcomes for developmentally disabled/delayed children at middle-childhood and preadolescence (ages 8/9 and 12/13), using data from child ages 3/4 and 6/7; (2) determining the predictors of family ecology and adaptation to DD children, at middle childhood (child age 10/11), and identifying family ecological factors and adaptation patterns associated with differential child and family outcomes; (3) converting research procedures for assessing family ecology and adaptation into a cost-effective instrument that can be used in assessment, intervention planning, and evaluation; and (4) determining in what ways the adaptation processes in families of DD children resemble those in families with other kinds of adaptation issues.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Project (R01)
Project #
5R01HD019124-08
Application #
3316320
Study Section
Human Development and Aging Subcommittee 3 (HUD)
Project Start
1986-01-01
Project End
1995-12-31
Budget Start
1993-01-01
Budget End
1993-12-31
Support Year
8
Fiscal Year
1993
Total Cost
Indirect Cost
Name
University of California Los Angeles
Department
Type
Other Domestic Higher Education
DUNS #
119132785
City
Los Angeles
State
CA
Country
United States
Zip Code
90095
Weisner, Thomas S; Hay, M Cameron (2015) Practice to research: integrating evidence-based practices with culture and context. Transcult Psychiatry 52:222-43
Skinner, Debra; Weisner, Thomas S (2007) Sociocultural studies of families of children with intellectual disabilities. Ment Retard Dev Disabil Res Rev 13:302-12
Daley, Tamara C; Weisner, Thomas S (2003) ""I speak a different dialect"": teen explanatory models of difference and disability. Med Anthropol Q 17:25-48
Keogh, B K; Garnier, H E; Bernheimer, L P et al. (2000) Models of child-family interactions for children with developmental delays: child-driven or transactional? Am J Ment Retard 105:32-46
Clare, L; Garnier, H; Gallimore, R (1998) Parents' developmental expectations and child characteristics: longitudinal study of children with developmental delays and their families. Am J Ment Retard 103:117-29
Keogh, B K; Bernheimer, L P; Guthrie, D (1997) Stability and change over time in cognitive level of children with delays. Am J Ment Retard 101:365-73
Gallimore, R; Coots, J; Weisner, T et al. (1996) Family responses to children with early developmental delays. II: Accommodation intensity and activity in early and middle childhood. Am J Ment Retard 101:215-32
Keogh, B K; Bernheimer, L P (1995) Etiologic conditions as predictors of children's problems and competencies in elementary school. J Child Neurol 10 Suppl 1:S100-5
Nihira, K; Weisner, T S; Bernheimer, L P (1994) Ecocultural assessment in families of children with developmental delays: construct and concurrent validities. Am J Ment Retard 98:551-66
Weisner, T S; Beizer, L; Stolze, L (1991) Religion and families of children with developmental delays. Am J Ment Retard 95:647-62

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