This project studies the expression of rheumatic diseases in an underserved, largely ethnic minority community in Washington, DC. Through the NIAMS Community Health Center, subjects with rheumatic compliants are evaluated and provide researchers with first-hand experience in understanding barriers to care. This project has supported research on cultural differences in understanding standardized self-report outcome assessment tools, use of complementary and alternative medicine in patients with rheumatic symptoms, understanding of the research process and informed consent among ethnic minorities, and validation in Spanish and English of a rheumatoid arthritis case-finding questionnaire for use in epidemiological studies. In addition, researchers have examined interventions to improve the referral process between primary care providers and subspecialists.

Project Start
Project End
Budget Start
Budget End
Support Year
4
Fiscal Year
2011
Total Cost
$358,980
Indirect Cost
Name
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Department
Type
DUNS #
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Ward, Michael M; Hu, Jinxiang; Guthrie, Lori C et al. (2018) Testing the construct validity of a health transition question using vignette-guided patient ratings of health. Health Qual Life Outcomes 16:2
Middleton, Kimberly R; Magaña López, Miriam; Haaz Moonaz, Steffany et al. (2017) A qualitative approach exploring the acceptability of yoga for minorities living with arthritis: 'Where are the people who look like me?' Complement Ther Med 31:82-89
Aggarwal, Rohit; Rider, Lisa G; Ruperto, Nicolino et al. (2017) 2016 American College of Rheumatology/European League Against Rheumatism criteria for minimal, moderate, and major clinical response in adult dermatomyositis and polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheu Ann Rheum Dis 76:792-801
Aggarwal, Rohit; Rider, Lisa G; Ruperto, Nicolino et al. (2017) 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheu Arthritis Rheumatol 69:898-910
Hu, Jinxiang; Ward, Michael M (2017) Screening for depression in arthritis populations: an assessment of differential item functioning in three self-reported questionnaires. Qual Life Res 26:2507-2517
Ward, Michael M; Guthrie, Lori C; Alba, Maria I (2017) Standards of Comparison and Discordance in Rheumatoid Arthritis Global Assessments Between Patients and Clinicians. Arthritis Care Res (Hoboken) 69:1260-1265
Ward, Michael M; Guthrie, Lori C; Dasgupta, Abhijit (2017) Direct and Indirect Determinants of the Patient Global Assessment in Rheumatoid Arthritis: Differences by Level of Disease Activity. Arthritis Care Res (Hoboken) 69:323-329
Ward, Michael M; Guthrie, Lori C (2017) Applicability of patient utilities as measures of overall quality of life in rheumatoid arthritis clinical trials. Rheumatology (Oxford) 56:239-246
Ward, Michael M; Guthrie, Lori C; Alba, Maria I (2015) Measures of arthritis activity associated with patient-reported improvement in rheumatoid arthritis when assessed prospectively versus retrospectively. Arthritis Care Res (Hoboken) 67:776-81
Ward, Michael M; Guthrie, Lori C; Alba, Maria (2015) Domain-specific transition questions demonstrated higher validity than global transition questions as anchors for clinically important improvement. J Clin Epidemiol 68:655-61

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