This project studies the expression of rheumatic diseases in an underserved, largely ethnic minority community in the Washington, DC metropolitan area. Through the NIAMS Community Health Center, subjects with rheumatic complaints are evaluated and provide researchers with first-hand experience in understanding ethnic differences in autoimmune diseases phenotypes as well as barriers to care. This project has supported research on cultural differences in understanding standardized self-report outcome assessment tools, determination of clinically important improvements in rheumatoid arthritis, use of complementary and alternative medicine in patients with rheumatic symptoms, acceptability of yoga as a treatment for arthritis by minority individuals, and understanding of the research process and informed consent among ethnic minorities. In addition, researchers have examined interventions to improve the referral process between primary care providers and subspecialists. Serological studies are currently underway to examine immune abnormalities in patients with rheumatoid arthritis and systemic lupus erythematosus. This protocol also supported a pilot study of yoga as self-care intervention for ethnic minority patients with osteoarthritis or rheumatoid arthritis.

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Support Year
10
Fiscal Year
2017
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Name
Arthritis, Musculoskeletal, Skin Dis
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Ward, Michael M; Hu, Jinxiang; Guthrie, Lori C et al. (2018) Testing the construct validity of a health transition question using vignette-guided patient ratings of health. Health Qual Life Outcomes 16:2
Hu, Jinxiang; Ward, Michael M (2017) Screening for depression in arthritis populations: an assessment of differential item functioning in three self-reported questionnaires. Qual Life Res 26:2507-2517
Ward, Michael M; Guthrie, Lori C; Alba, Maria I (2017) Standards of Comparison and Discordance in Rheumatoid Arthritis Global Assessments Between Patients and Clinicians. Arthritis Care Res (Hoboken) 69:1260-1265
Ward, Michael M; Guthrie, Lori C; Dasgupta, Abhijit (2017) Direct and Indirect Determinants of the Patient Global Assessment in Rheumatoid Arthritis: Differences by Level of Disease Activity. Arthritis Care Res (Hoboken) 69:323-329
Ward, Michael M; Guthrie, Lori C (2017) Applicability of patient utilities as measures of overall quality of life in rheumatoid arthritis clinical trials. Rheumatology (Oxford) 56:239-246
Middleton, Kimberly R; Magaña López, Miriam; Haaz Moonaz, Steffany et al. (2017) A qualitative approach exploring the acceptability of yoga for minorities living with arthritis: 'Where are the people who look like me?' Complement Ther Med 31:82-89
Aggarwal, Rohit; Rider, Lisa G; Ruperto, Nicolino et al. (2017) 2016 American College of Rheumatology/European League Against Rheumatism criteria for minimal, moderate, and major clinical response in adult dermatomyositis and polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheu Ann Rheum Dis 76:792-801
Aggarwal, Rohit; Rider, Lisa G; Ruperto, Nicolino et al. (2017) 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheu Arthritis Rheumatol 69:898-910
Ward, Michael M; Guthrie, Lori C; Alba, Maria I (2015) Measures of arthritis activity associated with patient-reported improvement in rheumatoid arthritis when assessed prospectively versus retrospectively. Arthritis Care Res (Hoboken) 67:776-81
Ward, Michael M; Guthrie, Lori C; Alba, Maria (2015) Domain-specific transition questions demonstrated higher validity than global transition questions as anchors for clinically important improvement. J Clin Epidemiol 68:655-61

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