The overall purpose of the Center for End-of-Life Transition Research is to advance the science of care for people facing the end-of-life transition across the life span (e.g., babies born dying, children, adults, and older adults). We will emphasize patient-centered, family-focused respectful death with planning for end-of life care that is consistent with the patients'and families'values and priorities (e.g., awareness about ways people die and advance care planning) and expected death experiences (e.g., palliative care, approaching dying, and bereavement).
The specific aims of this Center application are to: (1) advance nursing science related to the end-of-life transition;(2) strengthen the ethical use of qualitative and quantitative (mixed methods) methodologies by Center investigators/affiliates and train novices regarding the ethical issues in end of life research and mixed methods measurement of biobehavioral (biological, behavioral, and experiential) variables, management of data, and analysis of data;(3) expand the capacity to conduct end of-life research with informatics solutions that contribute to high integrity processes and efficient, valid, and reliable outcomes in institutional and community-based settings;and (4) facilitate the dissemination of end of-life research findings to the scientific and clinical communities and to the general public. Through the Center activities, we will advance the science of disparities in care at end-of-Iife and support research training in this area by providing core services and resources to investigators. The scientific focus is conceptually organized according to an ecologically based, health-related quality of life framework that addresses both person and environmental factors as they interact to affect respectful death outcomes for individuals and families. Studies supported by the Center will be designed to: (a) elucidate underlying physiological, experiential, and behavioral mechanisms that prognosticate or influence approaching death or bereavement;and (b) test culturally relevant interventions for death awareness and respectful death. The research supported by the Center will have a biobehavioral orientation and will include end-of life-care concepts that are measured physiologically (biologic function), experientially (symptoms, perceived health, quality of life), and behaviorally (functional status). The interaction of investigators with expertise in diverse groups of subjects will move the science of end-of-life care forward in new directions.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Center Core Grants (P30)
Project #
5P30NR010680-05
Application #
8097425
Study Section
Special Emphasis Panel (ZNR1-REV-B (04))
Program Officer
Aziz, Noreen M
Project Start
2007-09-29
Project End
2012-06-30
Budget Start
2011-07-13
Budget End
2012-06-30
Support Year
5
Fiscal Year
2011
Total Cost
$456,033
Indirect Cost
Name
University of Illinois at Chicago
Department
Other Health Professions
Type
Schools of Nursing
DUNS #
098987217
City
Chicago
State
IL
Country
United States
Zip Code
60612
Khokhar, Ashfaq; Lodhi, Muhammad Kamran; Yao, Yingwei et al. (2017) Framework for Mining and Analysis of Standardized Nursing Care Plan Data. West J Nurs Res 39:20-41
Wilkie, Diana J; Ezenwa, M O; Yao, Y et al. (2017) Pain Intensity and Misconceptions Among Hospice Patients With Cancer and Their Caregivers: Status After 2 Decades. Am J Hosp Palliat Care 34:318-324
Keenan, Gail M; Lopez, Karen Dunn; Yao, Yingwei et al. (2017) Toward Meaningful Care Plan Clinical Decision Support: Feasibility and Effects of a Simulated Pilot Study. Nurs Res 66:388-398
Hershberger, Patricia E; Kavanaugh, Karen (2017) Comparing appropriateness and equivalence of email interviews to phone interviews in qualitative research on reproductive decisions. Appl Nurs Res 37:50-54
Stapleton, Stephen J; Holden, Janean; Epstein, Joel et al. (2016) A Systematic Review of the Symptom Distress Scale in Advanced Cancer Studies. Cancer Nurs 39:E9-E23
Ezenwa, Miriam O; Fischer, Dena J; Epstein, Joel et al. (2016) Caregivers' perspectives on oral health problems of end-of-life cancer patients. Support Care Cancer 24:4769-77
Choi, Heeseung; Park, Hanjong; Suarez, Marie L et al. (2016) Feasibility of a web-based suicide awareness programme for Asian American college students. BMJ Open 6:e013466
Stapleton, Stephen J; Holden, Janean; Epstein, Joel et al. (2016) Symptom clusters in patients with cancer in the hospice/palliative care setting. Support Care Cancer 24:3863-71
Savage, Teresa A; Moro, Teresa Thalia; Boyden, Jackelyn Y et al. (2015) Implementation challenges in end-of-life research with adults with intellectual and developmental disabilities. Appl Nurs Res 28:202-5
Kavanaugh, Karen; Roscigno, Cecelia I; Swanson, Kristen M et al. (2015) Perinatal palliative care: Parent perceptions of caring in interactions surrounding counseling for risk of delivering an extremely premature infant. Palliat Support Care 13:145-55

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