Project (Impacts of Computer-mediated Caregiver Support Groups) evaluates the effectiveness of two types of computer-mediated support groups (CMSGs) for family caregivers of persons with dementia. The study addresses four key questions: 1) To what extent are theoretically- derived goals of CMSGs achieved in practice? 2) Which caregivers are most likely to use CMSGs? 3) Does CMSG participation ameliorate the negative outcomes of caregiving? And 4) Does the impact of CMSGs vary by type of leadership (professional versus lay)? The project consists of three complementary studies (A-C) using a sample drawn over a two- year period from caregivers enrolled in the ADRC Caregiving Core registry. Both clinical and Caregiving Core data are used. The analysis plan draws on the technical expertise and resources of the Data Management and Analysis Core. Study A is a normative evaluation of the intended intervention to determine the extent to which CMSGs actually accomplish the purposes and impart the benefits of dementia caregiver support groups envisioned by program planners. A content analyses of the peer-to-peer communications of CMSG members will be conducted, group participation patterns will be coded, and group users will be asked to report perceptions of benefits and drawbacks of participation. Study B involves both normative and causative components. The normative component addresses intervention targeting by modeling the relationship between caregiver demographic, personal, and situational characteristics and use of a CMSG. The causative component assesses the impact of CMSG participation on caregiver psychosocial resources and the stresses and outcomes associated with caregiving. The study builds on the Stress Process model and uses multi-level longitudinal analyses to test hypotheses. The study builds on the Stress Process model and uses multi- level longitudinal analyses to test hypotheses. Study C is an exploratory causative analyses of possible unintended impacts of MSG use and of ways in which CMSGs might be made more compatible with the needs of intended users. Study C is a thematic analyses of results of semi- structured interviews with a purposive sample of participants in Studies A and B. Results of Project 3 will provide new information on the capacity of computer-mediated communication to provide support services to family caregivers and the relative contributions of professional and peer leadership to achieving positive support group impacts.

Agency
National Institute of Health (NIH)
Institute
National Institute on Aging (NIA)
Type
Specialized Center (P50)
Project #
2P50AG008012-12A1
Application #
6323224
Study Section
Project Start
2000-07-01
Project End
2001-05-31
Budget Start
Budget End
Support Year
12
Fiscal Year
2000
Total Cost
$202,634
Indirect Cost
Name
Case Western Reserve University
Department
Type
DUNS #
077758407
City
Cleveland
State
OH
Country
United States
Zip Code
44106
Moon, Heehyul; Townsend, Aloen L; Whitlatch, Carol J et al. (2017) Quality of Life for Dementia Caregiving Dyads: Effects of Incongruent Perceptions of Everyday Care and Values. Gerontologist 57:657-666
Moon, Heehyul; Townsend, Aloen L; Dilworth-Anderson, Peggye et al. (2016) Predictors of Discrepancy Between Care Recipients With Mild-to-Moderate Dementia and Their Caregivers on Perceptions of the Care Recipients' Quality of Life. Am J Alzheimers Dis Other Demen 31:508-15
Nagpal, Neha; Heid, Allison R; Zarit, Steven H et al. (2015) Religiosity and quality of life: a dyadic perspective of individuals with dementia and their caregivers. Aging Ment Health 19:500-6
Merritt, Marcellus M; McCallum, T J (2013) Too much of a good thing?: Positive religious coping predicts worse diurnal salivary cortisol patterns for overwhelmed African American female dementia family caregivers. Am J Geriatr Psychiatry 21:46-56
Reamy, Allison M; Kim, Kyungmin; Zarit, Steven H et al. (2013) Values and preferences of individuals with dementia: perceptions of family caregivers over time. Gerontologist 53:293-302
Pirisinu, Laura; Nonno, Romolo; Esposito, Elena et al. (2013) Small ruminant nor98 prions share biochemical features with human gerstmann-sträussler-scheinker disease and variably protease-sensitive prionopathy. PLoS One 8:e66405
Xiao, Xiangzhu; Yuan, Jue; Haïk, Stéphane et al. (2013) Glycoform-selective prion formation in sporadic and familial forms of prion disease. PLoS One 8:e58786
Zarit, Steven H; Lee, Jeong E; Barrineau, Mary J et al. (2013) Fidelity and acceptability of an adaptive intervention for caregivers: an exploratory study. Aging Ment Health 17:197-206
Binoy Mathew, K V; Eapen, Charu; Kumar, P Senthil (2012) Reliability and Concurrent Validity of Dynamic Rotator Stability Test-A Cross Sectional study. Indian J Physiother Occup Ther 6:76-81
Reamy, Allison M; Kim, Kyungmin; Zarit, Steven H et al. (2011) Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers. Gerontologist 51:473-83

Showing the most recent 10 out of 227 publications