Individuals' religious beliefs and practices can be implicated and challenged as they deal with the consequences of advances in genomics. While many people can reconcile these two bodies of knowledge, others are made uneasy or distressed by this new science in ways that affect their personal and political choices. For the past two years with the support of the Center for the Study of Religion and Culture at Vanderbilt, faculty, staff, and graduate students at Vanderbilt University and Meharry Medical College, one of the nation's most distinguished historically black medical schools, have been working together to understand the role religion plays as clinicians - genetic counselors, nurses, and physicians, - clergy, and patients deal with learning about genetic contributions to disease in the clinical setting. Our work in this area has been both conceptual and empirical, with each inquiry informing and enriching the other. Other scholars around the country have been exploring this critical intersection as well. We seek funding in this application for a pre-conference meeting and an invited conference to bring our group together with investigators involved in transdisciplinary projects around the country as well as local participants from the clinic, the church, and the public. Our purpose is to identify: 1) What is currently understood about the role religion plays in individuals' response to genetic information; 2.) What is currently understood about the role religion plays in shaping clinicians' and clergy's efforts to assist patients and parishioners when dealing with genetic information; and 3) What resources are needed to assist patients, clinicians, and clergy. We anticipate that the outcomes of our work together will be a richer understanding of these issues, a series of publications directed toward clinicians and clergy, and collaborations for future explorations. ? ? ? ?

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Conference (R13)
Project #
1R13HG004689-01
Application #
7484855
Study Section
Ethical, Legal, and Social Implications of Human Genetics Study Section (ELS)
Program Officer
Boyer, Joy
Project Start
2008-03-05
Project End
2009-02-28
Budget Start
2008-03-05
Budget End
2009-02-28
Support Year
1
Fiscal Year
2008
Total Cost
$31,900
Indirect Cost
Name
Vanderbilt University Medical Center
Department
Internal Medicine/Medicine
Type
Schools of Medicine
DUNS #
004413456
City
Nashville
State
TN
Country
United States
Zip Code
37212
Kinney, Anita Y; Coxworth, James E; Simonson, Sara E et al. (2009) Religiosity, spirituality, and psychological distress in African-Americans at risk for having a hereditary cancer predisposing gene mutation. Am J Med Genet C Semin Med Genet 151C:13-21
Cowan, Ruth Schwartz (2009) Moving up the slippery slope: mandated genetic screening on Cyprus. Am J Med Genet C Semin Med Genet 151C:95-103
Lustig, Andrew (2009) Are enhancement technologies ""unnatural""? Musings on recent Christian conversations. Am J Med Genet C Semin Med Genet 151C:81-8
Bartlett, Virginia L; Johnson, Rolanda L (2009) God and genes in the caring professions: clinician and clergy perceptions of religion and genetics. Am J Med Genet C Semin Med Genet 151C:41-51
Geller, Gail; Micco, Ellyn; Silver, Rachel J et al. (2009) The role and impact of personal faith and religion among genetic service providers. Am J Med Genet C Semin Med Genet 151C:31-40
Jackson, Timothy P (2009) The patient as person in an increasingly gene-centric universe: how healthcare professionals should think about genomics and evolution. Am J Med Genet C Semin Med Genet 151C:89-94
Churchill, Larry R (2009) Religion, spirituality, and genetics: mapping the terrain for research purposes. Am J Med Genet C Semin Med Genet 151C:6-12
Harris, Tina M; Keeley, Bethany; Barrientos, Samantha et al. (2009) A religious framework as a lens for understanding the intersection of genetics, health, and disease. Am J Med Genet C Semin Med Genet 151C:22-30
White, Mary T (2009) Making sense of genetic uncertainty: the role of religion and spirituality. Am J Med Genet C Semin Med Genet 151C:68-76
Frader, Joel; Bosk, Charles L (2009) The personal is political, the professional is not: conscientious objection to obtaining/providing/acting on genetic information. Am J Med Genet C Semin Med Genet 151C:62-7

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