The Administrative Core is designed to ensure efficiency in the development, dissemination and application of new knowledge obtained by the Inherited Neuropathy Consortium (INC) RDCRC. The Central Administrative Core (CAC) is responsible for the overall administration of the INC and will oversee and coordinate interactions between the various components and projects of the INC. To achieve this goal, the CAC is comprised of Professor Michael Shy as the Director of INC RDCRC, Professor Steven Scherer as the Administrative Director, Professor David Herrmann as Clinical Liaison to the INC, Ms. Shawna Feely and Ms. Chelsea Bacon, as Clinical Coordinator and Assistant Clinical Coordinator. The Internal Advisory Board (IAB) will interact directly with the CAC on monthly conference calls. The IAB includes site PIs, the five INC Patient Advocacy Groups (PAGs), the INC Chief Biostatistician and DMCC representatives. We have added an International Liaison, a Diversity Liaison and Clinical Trial Committee to interact with the IAB. Finally, we will continue to interact with the INC External Advisory Committee (EAC) which is composed of internationally recognized investigators, PIs from additional RDCRC and representatives of the INC PAGs.

Agency
National Institute of Health (NIH)
Institute
National Institute of Neurological Disorders and Stroke (NINDS)
Type
Specialized Center--Cooperative Agreements (U54)
Project #
5U54NS065712-13
Application #
10004174
Study Section
Special Emphasis Panel (ZTR1)
Project Start
2009-09-30
Project End
2024-06-30
Budget Start
2020-07-01
Budget End
2021-06-30
Support Year
13
Fiscal Year
2020
Total Cost
Indirect Cost
Name
University of Iowa
Department
Type
DUNS #
062761671
City
Iowa City
State
IA
Country
United States
Zip Code
52242
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Shy, Michael E (2018) Antisense oligonucleotides offer hope to patients with Charcot-Marie-Tooth disease type 1A. J Clin Invest 128:110-112
Jerath, Nivedita U; Mankodi, Ami; Crawford, Thomas O et al. (2018) Charcot-Marie-Tooth Disease type 4C: Novel mutations, clinical presentations, and diagnostic challenges. Muscle Nerve 57:749-755
Tomaselli, Pedro J; Horga, Alejandro; Rossor, Alexander M et al. (2018) IGHMBP2 mutation associated with organ-specific autonomic dysfunction. Neuromuscul Disord 28:1012-1015

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