This project will generate statistically sound estimates on patient populations with hemoglobinopathies, including sickle cell disease and thalassemias, and store biospecimen to use in genetic and genomic analyses. Ultimately, RuSH will provide data for population-based and clinical studies, health services planning, and policies to improve the health and quality of life of people with hemoglobinopathies. In addition to providing data for population-based and clinical research, RuSH will also provide data for states and localities to use in health care and other planning.

Agency
National Institute of Health (NIH)
Institute
National Heart, Lung, and Blood Institute (NHLBI)
Type
NIH Inter-Agency Agreements (Y01)
Project #
Y1HB9045-4-0-1
Application #
7980706
Study Section
Project Start
Project End
Budget Start
Budget End
Support Year
Fiscal Year
2009
Total Cost
$1,511,239
Indirect Cost
Name
National Heart, Lung, and Blood Institute
Department
Type
DUNS #
City
State
Country
Zip Code