The purpose of this focus group study is to determine the adequacy of prenatal genetic counseling as practiced in the United States for people who have a Japanese cultural background, and to describe how genetic counselors can better address the needs and preferences of these people.
The aims of the study are: 1. To assess what questions and needs Japanese People who are living in the US would have in a prenatal genetic counseling session, 2. To document the extent to which these people would feel comfortable talking about their emotions and psychological concerns in a genetic counseling session, 3. To describe how these people would make a decision about the pregnancy and prenatal diagnosis, 4. To document whether these needs and attitudes vary according to their degrees of acculturation.

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Intramural Research (Z01)
Project #
1Z01HG000213-01
Application #
6681723
Study Section
Molecular Genetics B Study Section (MGB)
Project Start
Project End
Budget Start
Budget End
Support Year
1
Fiscal Year
2002
Total Cost
Indirect Cost
Name
Human Genome Research
Department
Type
DUNS #
City
State
Country
United States
Zip Code