The overall goals of this project are to develop relevant, evidence-based clinical practice guidelines for genetic testing for BRCA1/2 through a consensus process involving community care practitioners and oncologists, and to evaluate the effect of the guidelines on clinical practice. The project will convene a Guidelines Group. Educational materials will be developed based on the guidelines, to aid clinicians in pedigree assessment, interpretation of the risks and benefits of BRCA 1/2 testing, and use of cancer surveillance or other individuals with increased cancer risk. Educational seminars based on these materials will be presented to community physicians. These materials will be assessed using standardized patient encounters.
| Culver, Julie O; Bowen, Deborah J; Reynolds, Susan E et al. (2009) Breast cancer risk communication: assessment of primary care physicians by standardized patients. Genet Med 11:735-41 |
| Press, Nancy; Reynolds, Susan; Pinsky, Linda et al. (2005) 'That's like chopping off a finger because you're afraid it might get broken': disease and illness in women's views of prophylactic mastectomy. Soc Sci Med 61:1106-17 |
| Burke, W; Olsen, A H; Pinsky, L E et al. (2001) Misleading presentation of breast cancer in popular magazines. Eff Clin Pract 4:58-64 |
| Burke, W; Pinsky, L E; Press, N A (2001) Categorizing genetic tests to identify their ethical, legal, and social implications. Am J Med Genet 106:233-40 |
| Durfy, S J; Buchanan, T E; Burke, W (1998) Testing for inherited susceptibility to breast cancer: a survey of informed consent forms for BRCA1 and BRCA2 mutation testing. Am J Med Genet 75:82-7 |
