The proposed demonstration and education research project is designed to develop and evaluate a health education program to be used by cystic fibrosis centers to assist CF patients and their families develop skills for the self-management of CF and to cope effectively with the psychosocial impact of CF. The CF Center at Baylor College of Medicine will be used to develop and conduct formative evaluation of the CF health education program. The CF Center at Emory University will serve as the site for a randomized clinical trial of the health education program to determine its impact on educational and behavioral variables and the effectveness of the program to influence health status and quality of life outcomes. The outcome measures will include a general clinical assessment, pulmonary function, nutritional status, social development, adaptive functioning and family psychosocial functioning. The health education program will be conducted for two years and data will be collected before and after the intervention for the treatment and control groups. Evaluation results will be used to revise and prepare the health education program for dissemination and use by other CF centers.

Agency
National Institute of Health (NIH)
Institute
National Heart, Lung, and Blood Institute (NHLBI)
Type
Research Project (R01)
Project #
5R01HL038339-04
Application #
3354535
Study Section
Special Emphasis Panel (SRC (01))
Project Start
1987-07-01
Project End
1992-06-30
Budget Start
1990-07-01
Budget End
1991-06-30
Support Year
4
Fiscal Year
1990
Total Cost
Indirect Cost
Name
Baylor College of Medicine
Department
Type
Schools of Medicine
DUNS #
074615394
City
Houston
State
TX
Country
United States
Zip Code
77030
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Czyzewski, D I; Mariotto, M J; Bartholomew, L K et al. (1994) Measurement of quality of well being in a child and adolescent cystic fibrosis population. Med Care 32:965-72
Sockrider, M M; Swank, P R; Seilheimer, D K et al. (1994) Measuring clinical status in cystic fibrosis: internal validity and reliability of a modified NIH score. Pediatr Pulmonol 17:86-96
Bartholomew, L K; Parcel, G S; Swank, P R et al. (1993) Measuring self-efficacy expectations for the self-management of cystic fibrosis. Chest 103:1524-30
Bartholomew, L K; Sockrider, M M; Seilheimer, D K et al. (1993) Performance objectives for the self-management of cystic fibrosis. Patient Educ Couns 22:15-25
Bartholomew, L K; Parcel, G S; Seilheimer, D K et al. (1991) Development of a health education program to promote the self-management of cystic fibrosis. Health Educ Q 18:429-43