As clinicians are forced to decrease time spent with patients and the specialization and fragmentation of care increases, patients are required to play an increasingly prominent role in their health care. Yet, few information tools exist to support patients in this active role. In particular, patients often must coordinate their health care across multiple clinicians, learn new health terminology, make treatment choices, manage their home care, track insurance benefits, etc. At the same time, patients are trying to maintain their normal professional and personal lives, but the intense information management demands placed on them can interfere with all those activities. Little is known about this information management work of patients, but such knowledge must be a first step towards developing the tools that patients need to support their active role. The long-term objective of this research is both to understand patients'information management work and to develop new technology that will support that work. Specifically, we propose to (1) develop a model of patients'personal health information management work, (2) develop new technology that supports patients in that work, and (3) evaluate the effectiveness of our new technology in helping patients manage their personal health information, participate in their own health care, and maintain their daily life activities. Our study design is distinctive because we include patients in all facets of our research, including field studies of patients'information work in the home and the clinic, collaborative technology design of new information technology to support patients'work, and evaluation of the technology in the home.

Agency
National Institute of Health (NIH)
Institute
National Library of Medicine (NLM)
Type
Research Project (R01)
Project #
5R01LM009143-03
Application #
7689169
Study Section
Special Emphasis Panel (ZLM1-ZH-R (M3))
Program Officer
Sim, Hua-Chuan
Project Start
2007-09-15
Project End
2011-09-14
Budget Start
2009-09-15
Budget End
2011-09-14
Support Year
3
Fiscal Year
2009
Total Cost
$367,216
Indirect Cost
Name
University of Washington
Department
Miscellaneous
Type
Schools of Medicine
DUNS #
605799469
City
Seattle
State
WA
Country
United States
Zip Code
98195
Pollack, Ari H; Backonja, Uba; Miller, Andrew D et al. (2016) Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization. Proc SIGCHI Conf Hum Factor Comput Syst 2016:5324-5336
Klasnja, Predrag; Pratt, Wanda (2012) Healthcare in the pocket: mapping the space of mobile-phone health interventions. J Biomed Inform 45:184-98
Patel, Rupa A; Klasnja, Predrag; Hartzler, Andrea et al. (2012) Probing the benefits of real-time tracking during cancer care. AMIA Annu Symp Proc 2012:1340-9
Hartzler, Andrea; Skeels, Meredith M; Mukai, Marlee et al. (2011) Sharing is caring, but not error free: transparency of granular controls for sharing personal health information in social networks. AMIA Annu Symp Proc 2011:559-68
Hartzler, Andrea; Pratt, Wanda (2011) Managing the personal side of health: how patient expertise differs from the expertise of clinicians. J Med Internet Res 13:e62
Skeels, Meredith M; Unruh, Kenton T; Powell, Christopher et al. (2010) Catalyzing Social Support for Breast Cancer Patients. Proc SIGCHI Conf Hum Factor Comput Syst 2010:173-182
Unruh, Kenton T; Skeels, Meredith; Civan-Hartzler, Andrea et al. (2010) Transforming Clinic Environments into Information Workspaces for Patients. Proc SIGCHI Conf Hum Factor Comput Syst 2010:183-192
Civan-Hartzler, Andrea; McDonald, David W; Powell, Chris et al. (2010) Bringing the Field into Focus: User-centered Design of a Patient Expertise Locator. Proc SIGCHI Conf Hum Factor Comput Syst 2010:1675-1684
Klasnja, Predrag; Hartzler, Andrea Civan; Unruh, Kent T et al. (2010) Blowing in the Wind: Unanchored Patient Information Work during Cancer Care. Proc SIGCHI Conf Hum Factor Comput Syst 2010:193-202
Civan, Andrea; McDonald, David W; Unruh, Kenton T et al. (2009) Locating Patient Expertise in Everyday Life. GROUP ACM SIGCHI Int Conf Support Group Work 2009:291-300

Showing the most recent 10 out of 12 publications