Video Information Provider for HIV-Associated Non-AIDS (VIP-HANA) Symptoms AIDS-related malignancies and death were hallmark features of the HIV epidemic until the mid-1990s. Today, a 20-year-old HIV-positive non-injection drug user in the US can expect to live to age 65. As a result, people living with HIV/AIDS (PLWHA) face new challenges from HIV-Associated Non-AIDS (HANA) conditions such as cardiovascular disease, osteoporosis, COPD, and diabetes. Since treatment does not fully restore immune health and multi-morbidity is high, PLWHA, especially those with HANA conditions, often experience re- occurring symptoms from both the disease and its treatment, making long-term management of symptoms critical for improved health outcomes. An individual's ability to self-manage the symptoms of his or her HIV illness has been shown to decrease symptom severity, improve quality of life, reduce disability, increase medication adherence, and promote health. The proposed research expands upon our innovative pilot work that developed and tested a web-based symptom reporting and self-management system, Video Information Provider (VIP) for PLWHA. The goal of the work in this proposed study is to develop and test an intervention, the VIP-HANA system, a web application that delivers self-care strategies tailored to symptom reporting, HANA condition(s) and gender. To address the needs of the growing population of PLWHA with HANA conditions, the aims of our study are to: (1a) Identify the most prevalent symptoms and self-care strategies of PLWHA with HANA conditions in order to modify the VIP system into the VIP-HANA system; (1b) Evaluate the VIP-HANA system for violations of usability principles; (2) Compare the efficacy of VIP-HANA to a control arm for ameliorating symptom frequency and intensity and secondary health outcomes in 100 PLWHA with HANA conditions over 6 months; and (3) Understand PLWHA's perceptions of the predisposing, enabling, and reinforcing factors for VIP-HANA use with theoretically-guided focus group sessions. Our study activities are focused on identifying the symptom experience and self-care strategies for PLWHA with HANA conditions and enhancing an existing web application for HIV symptom self-management. The proposed project focuses on the development and evaluation of VIP-HANA, an intervention aimed at improving symptom status, enhancing quality of life, increasing functional capacity, and reducing frailty in PLWHA. The proposed study is consistent with FOA: PA 13-210 development, adaptation, or testing interventions aimed at identifying and managing symptoms related to HIV-Associated Non-AIDS (HANA) conditions, specifically functional capacity and frailty and increasing self-care of HIV-infected persons with HANA conditions. Findings from this study will increase knowledge of HANA symptoms, self-care strategies used to manage these symptoms, and the usability and efficacy of the VIP-HANA system.

Public Health Relevance

Our goal in this study is to improve the management of adverse symptoms related to HIV-Associated Non-Aids (HANA) conditions for people living with HIV/AIDS (PLWHA) with these conditions. Our study activities are focused on identifying the symptom experience and self-care strategies for PLWHA with HANA conditions. Findings from this study will increase knowledge of the symptoms associated with HANA conditions, self-care strategies used to manage these symptoms and how to best deliver this information to PLWHA in their everyday settings.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Research Project (R01)
Project #
3R01NR015737-04S1
Application #
9756719
Study Section
Special Emphasis Panel (ZRG1)
Program Officer
Henry, Rebecca
Project Start
2015-07-16
Project End
2020-05-31
Budget Start
2018-06-01
Budget End
2019-05-31
Support Year
4
Fiscal Year
2018
Total Cost
Indirect Cost
Name
Columbia University (N.Y.)
Department
Other Health Professions
Type
Schools of Nursing
DUNS #
621889815
City
New York
State
NY
Country
United States
Zip Code
10032
Schnall, Rebecca; Siegel, Karolynn; Jia, Haomiao et al. (2018) Racial and socioeconomic disparities in the symptom reporting of persons living with HIV. AIDS Care 30:774-783
Iribarren, Sarah; Siegel, Karolynn; Hirshfield, Sabina et al. (2018) Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions. AIDS Behav 22:297-307
Schnall, Rebecca; Liu, Jianfang; Iribarren, Sarah (2018) Information sources of self-care strategies for persons living with HIV. Int J Med Inform 111:1-6
Schnall, Rebecca; Hirshfield, Sabina; Liu, Jianfang et al. (2018) Characteristics of Persons Living With HIV Who Have Informal Caregivers in the cART Age of the Epidemic. J Assoc Nurses AIDS Care 29:152-162
Stonbraker, Samantha; Cho, Hwayoung; Hermosi, Gabriella et al. (2018) Usability Testing of a mHealth App to Support Self-Management of HIV-Associated Non-AIDS Related Symptoms. Stud Health Technol Inform 250:106-110
Schnall, Rebecca; Jia, Haomiao; Olender, Susan et al. (2018) In people living with HIV (PLWH), menopause (natural or surgical) contributes to the greater symptom burden in women: results from an online US survey. Menopause 25:744-752
Cho, Hwayoung; Iribarren, Sarah; Schnall, Rebecca (2017) Technology-Mediated Interventions and Quality of Life for Persons Living with HIV/AIDS. A Systematic Review. Appl Clin Inform 8:348-368
Schnall, Rebecca; Cho, Hwayoung; Webel, Allison (2017) Predictors of willingness to use a smartphone for research in underserved persons living with HIV. Int J Med Inform 99:53-59
Schnall, Rebecca; Liu, Jianfang; Cho, Hwayoung et al. (2017) A Health-Related Quality-of-Life Measure for Use in Patients with HIV: A Validation Study. AIDS Patient Care STDS 31:43-48
Schnall, Rebecca (2016) ANI Emerging Leaders Project: Point-of-Care Technology for HIV Prevention and Management. Comput Inform Nurs 34:193-5