This is a proposal for an interdisciplinary team from Brown University, led by Dennis Hogan, to join NICHD's Family and Child Well-Being Research Network to strength studies of child disability and the family. This team would contribute its focus on disability among school-age children: The measurement of disability among children, differentials in its antecedents and in medical services and rehabilitation inputs, and disabled but who have a disabled sibling, and for the parents of a disabled child. W make baseline comparisons with children and parents from families without child disability. The individual research plan focuses on identifying children with disability and measuring disability in order to investigate (a) its effects on the health, education, family, security, family stability and structure, and social development and problem behavior of all children, distinguishing between children with disability, siblings of children with disability, and children in families without child disability; and (b) the demographic and economic consequences for parents. The cooperative research plan focuses on methodological innovations to improve the measurement of disability among children and its dynamics in families. This includes two elements: (a) the collection of pilot data on the functioning and disability of a cohort of 90 very low birth weight babies at ages 3 and 5, to more satisfactorily address issues of selectivity and controls in medical studies of child disability and to develop improved methodologies to measure child disability in population surveys, including those in use in the Network; and (b) the merging of two secondary data sets to obtain maternal and family life histories, and thus to clarify the dynamics of maternal antecedents of child disability and maternal responses to child disability.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Project--Cooperative Agreements (U01)
Project #
5U01HD037614-02
Application #
6182651
Study Section
Special Emphasis Panel (ZHD1-DRG-A (09))
Program Officer
Newcomer, Susan
Project Start
1999-04-12
Project End
2004-03-31
Budget Start
2000-04-01
Budget End
2001-03-31
Support Year
2
Fiscal Year
2000
Total Cost
$338,691
Indirect Cost
Name
Brown University
Department
Type
Organized Research Units
DUNS #
001785542
City
Providence
State
RI
Country
United States
Zip Code
02912
Loft, Lisbeth Trille G; Hogan, Dennis (2014) Does care matter? Care capital and mothers' time to paid employment. J Popul Res (Canberra) 31:237-252
Shandra, Carrie L; Hogan, Dennis P (2012) Delinquency Among Adolescents with Disabilities. Child Indic Res 5:
Msall, Michael E; Avery, Roger C; Msall, Emily R et al. (2007) Distressed neighborhoods and child disability rates: analyses of 157,000 school-age children. Dev Med Child Neurol 49:814-7
Msall, Michael E (2007) The limits of viability and the uncertainty of neuroprotection: challenges in optimizing outcomes in extreme prematurity. Pediatrics 119:158-60
Msall, Michael E (2006) The panorama of cerebral palsy after very and extremely preterm birth: evidence and challenges. Clin Perinatol 33:269-84
Msall, Michael E (2006) Neurodevelopmental surveillance in the first 2 years after extremely preterm birth: evidence, challenges, and guidelines. Early Hum Dev 82:157-66
Msall, Michael E (2005) Measuring functional skills in preschool children at risk for neurodevelopmental disabilities. Ment Retard Dev Disabil Res Rev 11:263-73
Msall, Michael E (2004) Developmental vulnerability and resilience in extremely preterm infants. JAMA 292:2399-401
Park, Jennifer M; Hogan, Dennis P; Goldscheider, Frances K (2003) Child disability and mothers' tubal sterilization. Perspect Sex Reprod Health 35:138-43
Msall, Michael E; Avery, Roger C; Tremont, Michelle R et al. (2003) Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments. Pediatrics 111:548-53

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