This protocol seeks to survey individuals at risk for Alzheimers disease with respect to their (1) willingness to participate in clinical research should they develop Alzheimers disease, (2) willingness to utilize research advance directives, (3) attitudes toward research with stored tissues, (4) attitude toward confidentiality of research results, and (5) experience with genetic counseling. We seek to survey 500 individuals. We have surveyed 310 thus far; surveying is continuing
| Wendler, Dave; Emanuel, Ezekiel (2002) The debate over research on stored biological samples: what do sources think? Arch Intern Med 162:1457-62 |
| Wendler, Dave; Martinez, Rick A; Fairclough, Diane et al. (2002) Views of potential subjects toward proposed regulations for clinical research with adults unable to consent. Am J Psychiatry 159:585-91 |
