Dr. Michelson's long term career goals are to become a pediatric critical care physician scientist investigating interventions designed to improve end-of-life care and a nationally known expert in bioethics. To this end, Dr. Michelson has completed a Master's degree in Public Health and obtained funding to support research in pediatric end-of-life decision making. Her previous research used qualitative and quantitative methods to better understand the views of Pediatric Intensive Care Unit (PICU) patients'parents on end-of-life decision making. Her immediate goals are to increase her knowledge of and experience in qualitative methods, instrument development/testing, and bioethics so that she can become an independent investigator sustaining her research with external support. Her career development and training will be overseen by Dr. Joel Frader and Dr. Linda Emanuel. She will also receive support and guidance from a multidisciplinary mentorship committee. The research and training will take place at Children's Memorial Hospital, Northwestern University and the University of Chicago MacLean Center for Clinical Medical Ethics. Dr. Michelson's career development plan includes: 1) selective coursework in qualitative methods, instrument development/testing, health care communication, decision making, palliative care, bioethics, and manuscript preparation;2) conferences and seminars;3) participation in related research;and 4) gaining proficiency in conducting qualitative research and instrument development/testing. Her research purposes to develop and conduct a preliminary evaluation of an advance care planning worksheet for parents of PICU patients. Currently, no practice-derived, empirically-validated advance care planning tool exists in pediatrics. She will: 1) collect experiential data from parents of deceased children and PICU caregivers using qualitative methods;2) create the worksheet using the experiential data and other relevant resources;and 3) perform pilot testing of the worksheet using focus groups. After developing the worksheet, Dr. Michelson will obtain additional funding to do a study that evaluates the worksheet in the clinically setting and tests the hypothesis that the advance care planning worksheet will aid parents through the process of end-of-life decision making and facilitate communication between parents and caregivers thereby improving pediatric end-of-life care.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Mentored Patient-Oriented Research Career Development Award (K23)
Project #
5K23HD054441-04
Application #
7760910
Study Section
Pediatrics Subcommittee (CHHD)
Program Officer
Jenkins, Tammara L
Project Start
2007-02-05
Project End
2012-01-31
Budget Start
2010-02-01
Budget End
2011-01-31
Support Year
4
Fiscal Year
2010
Total Cost
$123,409
Indirect Cost
Name
Children's Memorial Hospital (Chicago)
Department
Type
DUNS #
074438755
City
Chicago
State
IL
Country
United States
Zip Code
60611
Michelson, Kelly Nicole; Blehart, Kathleen; Hochberg, Todd et al. (2013) Bereavement photography for children: program development and health care professionals' response. Death Stud 37:513-28
Michelson, Kelly Nicole; Patel, Rachna; Haber-Barker, Natalie et al. (2013) End-of-life care decisions in the PICU: roles professionals play. Pediatr Crit Care Med 14:e34-44
Michelson, Kelly Nicole; Clayman, Marla L; Haber-Barker, Natalie et al. (2013) The use of family conferences in the pediatric intensive care unit. J Palliat Med 16:1595-601
Michelson, Kelly Nicole; Emanuel, Linda; Carter, Andrea et al. (2011) Pediatric intensive care unit family conferences: one mode of communication for discussing end-of-life care decisions. Pediatr Crit Care Med 12:e336-43
Michelson, Kelly Nicole; Koogler, Tracy; Sullivan, Christine et al. (2009) Parental views on withdrawing life-sustaining therapies in critically ill children. Arch Pediatr Adolesc Med 163:986-92
Michelson, Kelly Nicole; Ryan, Anne Daley; Jovanovic, Borko et al. (2009) Pediatric residents' and fellows' perspectives on palliative care education. J Palliat Med 12:451-7
Michelson, Kelly Nicole; Steinhorn, David M (2007) Pediatric End-of-Life Issues and Palliative Care. Clin Pediatr Emerg Med 8:212-219