Project ACTS II: Increasing Donor Registration among African Americans Abstract The proposed project brings together a multidisciplinary team with expertise in the behavioral sciences, epidemiology, ethnic/racial minority health, and transplantation to evaluate the effectiveness of a culturally- sensitive intervention (Project ACTS: About Choices in Transplantation and Sharing) designed to increase registration on the Georgia state donor registry in metropolitan Atlanta areas that have the highest percentages of African Americans (AAs) and the lowest percentage of state donor registrants. Almost 10 years ago, Project ACTS (a DVD and educational booklet) was developed to address many of the well-known barriers to donation among AAs. It was originally developed based on a deep structure model of cultural sensitivity (Resnicow et al., 1999) by virtue of its emphasis on encouraging family discussion of donation intentions and its focus on addressing religious myths. However, Georgia legislation has since changed to allow for the legal expression of donation wishes (even in the face of family objection) through registration on the state donor registry. Subsequently, Project ACTS II was modified to deemphasize family discussion and include wider representation of experiences in donation/transplantation with demonstrated efficacy among community- recruited AA adults. While the preliminary evidence evaluating Project ACTS II is encouraging, the central question about its ability to increase public commitment to donation remains unanswered: To what extent is Project ACTS II effective at increasing registration on the state donor registry in areas that have the highest percentage of AAs and the lowest percentage of donor registration? Using the IIFF Model of Donor Registration (Immediate and complete registration opportunity, Information, Focused engagement, and Favorable action;Siegal et al., 2010), the proposed project will engage 16 community health workers in the implementation of Project ACTS II in targeted metro-Atlanta areas in order to reach 4,000 community members.
The specific aims are as follows:
Aim 1 : To determine the 32 ZIP codes in a 5-county metro-Atlanta area with both the highest percentage of AAs and the lowest percentage of registrants on the state donor registry;
Aim 2 : To deliver Project ACTS II at 25 discussion sessions in each of 16 ZIP codes identified in Aim 1;
Aim 3 : To conduct a process and outcome evaluation of Project ACTS II. H1: Individuals attending Project ACTS II sessions will demonstrate significantly improved donation-related knowledge, more favorable attitudes and beliefs towards organ and tissue donation, and increased likelihood to register on the state donor registry from baseline to immediate follow-up. H2: ZIP codes in which Project ACTS II sessions are being conducted will demonstrate a significant increase in donor registrations as compared to control ZIP codes in which Project ACTS II sessions are not being conducted.

Public Health Relevance

Project ACTS II: Increasing Donor Registration among African Americans. African Americans are overrepresented on the transplant list, due in part, to the lack of histo-compatible donors. The proposed study seeks to increase public commitment to donation using a culturally-sensitive intervention targeting African Americans. In doing so, we intend to increase the number of African Americans on the Georgia state donor registry, thereby increasing the number of potential donors.

Agency
National Institute of Health (NIH)
Institute
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Type
Research Project (R01)
Project #
5R01DK079713-07
Application #
8513980
Study Section
Health Disparities and Equity Promotion Study Section (HDEP)
Program Officer
Mcbryde, Kevin D
Project Start
2007-08-01
Project End
2017-04-30
Budget Start
2013-05-01
Budget End
2014-04-30
Support Year
7
Fiscal Year
2013
Total Cost
$446,936
Indirect Cost
$158,590
Name
Emory University
Department
Psychology
Type
Schools of Public Health
DUNS #
066469933
City
Atlanta
State
GA
Country
United States
Zip Code
30322
Robinson, Dana H Z; Klammer, Susan M Gerbensky; Perryman, Jennie P et al. (2014) Understanding African American's religious beliefs and organ donation intentions. J Relig Health 53:1857-72
McDonald, Evangeline L; Powell, C Lamonte; Perryman, Jennie P et al. (2013) Understanding the relationship between trust in health care and attitudes toward living donor transplant among African Americans with end-stage renal disease. Clin Transplant 27:619-26
Arriola, Kimberly R Jacob; Robinson, Dana H Z; Perryman, Jennie P et al. (2013) Project ACTS II: organ donation education for African American adults. Ethn Dis 23:230-7
Robinson, Dana H Z; Perryman, Jennie P; Thompson, Nancy J et al. (2012) Testing the utility of a modified organ donation model among African American adults. J Behav Med 35:364-74
Russell, Emily; Robinson, Dana H Z; Thompson, Nancy J et al. (2012) Distrust in the healthcare system and organ donation intentions among African Americans. J Community Health 37:40-7