) Knowledge building concerning the contexts within which informed decision making and consent take place is critical at a time when the provision of basic medical services, the institution of medicine and the constitution of the hospital are changing. The consequent social, cultural and ethical quandaries that are created by these changes have direct import for the delivery of medical care, the patients' involvement and participation in their care, the promotion of health, the prevention of disease and the advancement of knowledge through medical-scientific research. The first-hand, in-depth observation of the interaction between physician and breast cancer patient within the decision making and consent process will provide 1) the data necessary to analyze this critical process in scientific and medical treatment and research and 2) the knowledge to integrate psychosocial and biomedical concerns with the bioethical issues that must be faced in making life altering decisions concerning cancer prevention, treatment and research. The primary aims of the proposed research will be accomplished through and ethnographic inquiry that will include methods of the in-depth interview and field observation. Breast cancer patients and their physicians will be the participants. The women patients and physicians will come from varied ethnic, age, religious, economic and educational backgrounds. A casebook containing a variety of decision making and consent situations will be developed, based on the data, with the aim of enhancing comprehension and access to information.

Agency
National Institute of Health (NIH)
Institute
National Cancer Institute (NCI)
Type
Small Research Grants (R03)
Project #
1R03CA077101-01
Application #
2547692
Study Section
Subcommittee G - Education (NCI)
Program Officer
Meissner, Helen I
Project Start
1997-09-30
Project End
1999-09-29
Budget Start
1997-09-30
Budget End
1999-09-29
Support Year
1
Fiscal Year
1997
Total Cost
Indirect Cost
Name
University of Pennsylvania
Department
Type
Schools of Nursing
DUNS #
042250712
City
Philadelphia
State
PA
Country
United States
Zip Code
19104
Freedman, Tovia G (2003) Prescriptions for health providers: from cancer patients. Cancer Nurs 26:323-30
Freedman, Tovia G (2002) 'The doctor knows best' revisited: physician perspectives. Psychooncology 11:327-35
Freedman, T G (1998) ""Why don't they come to Pike Street and ask us""?: Black American women's health concerns. Soc Sci Med 47:941-7