Building Trust between Minorities and Researchers The representation of minorities in public health and biomedical research still lags behind that of whites. This represents an ongoing challenge to the validity and generalizability of research findings, which consequently contributes to disparities in health status and care, both of which constitute an injustice to unrepresented minority groups. There are multiple factors that influence the participation of minorities, including that lack of access to research, lack of knowledge and distrust, and barriers such as attitudes of researchers and health professionals. This proposal unites a strong team of public health researchers, bioethicists, multiple Clinical and Translational Science Institutes, and the organization, Public Responsibility in Medicine and Research, to propose the first effort that seeks simultaneously to impact minority communities, investigators and IRB members. Utilizing qualitative and quantitative methods, we will examine the attitudes, knowledge and behaviors of researchers and identify best practices in community engagement;determine the level of knowledge about research, informed consent and willingness to participate in research among a national random sample of minorities only;develop, pilot test and revise a curriculum, """"""""Building Trust"""""""" for minority communities;and finally, develop and implement multiple trainings aimed at enhancing the capacity of researchers and IRB members to support recruitment and engagement with minority communities. Our over- arching goal is to create a sustainable infrastructure of training and educational initiatives, which can be evaluated over time to determine their impact on improving minority participation in research. The goal of our """"""""Building Trust"""""""" Bioethics Research Infrastructure Initiative is to develop, implement and evaluate strategies aimed at increasing minority participation in biomedical and public health research, including clinical trials. Our campaign will produce effective, sustainable tools that can be implemented and evaluated to determine the extent to which they contribute to the increase in minority participation in NIH sponsored research and increase the self-efficacy of investigators dedicated to this goal.

Public Health Relevance

The goal of our Building Trust Bioethics Research Infrastructure Initiative is to develop, implement and evaluate strategies aimed at increasing minority participation in biomedical and public health research, including clinical trials. Our campaign will produce effective, sustainable tools that can be implemented and evaluated to determine the extent to which they contribute to the increase in minority participation in NIH sponsored research and increase the self-efficacy of investigators dedicated to this goal.

Agency
National Institute of Health (NIH)
Institute
National Institute on Minority Health and Health Disparities (NIMHD)
Type
High Impact Research and Research Infrastructure Programs (RC2)
Project #
7RC2MD004766-03
Application #
8112814
Study Section
Special Emphasis Panel (ZMD1-PA (R5))
Program Officer
Goodwin, Paula
Project Start
2009-09-28
Project End
2012-06-30
Budget Start
2010-09-27
Budget End
2012-06-30
Support Year
3
Fiscal Year
2010
Total Cost
$1,018,818
Indirect Cost
Name
University of Maryland College Park
Department
Type
Schools of Public Health
DUNS #
790934285
City
College Park
State
MD
Country
United States
Zip Code
20742
Garza, Mary A; Quinn, Sandra Crouse; Li, Yan et al. (2017) The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research. Contemp Clin Trials Commun 7:57-63
Fryer, Craig S; Passmore, Susan R; Maietta, Raymond C et al. (2016) The Symbolic Value and Limitations of Racial Concordance in Minority Research Engagement. Qual Health Res 26:830-41
Passmore, Susan R; Fryer, Craig S; Butler, James et al. (2016) Building a ""Deep Fund of Good Will"": Reframing Research Engagement. J Health Care Poor Underserved 27:722-40
Brown, Natasha A; Thornton, Rachel L J; Smith, Katherine Clegg et al. (2014) ""It's like big mama's house"": examining extended family influences on the dietary behaviors of African American children. Ecol Food Nutr 53:149-70
Butler 3rd, James; Quinn, Sandra C; Fryer, Craig S et al. (2013) Characterizing researchers by strategies used for retaining minority participants: results of a national survey. Contemp Clin Trials 36:61-7
Quinn, Sandra C; Kass, Nancy E; Thomas, Stephen B (2013) Building trust for engagement of minorities in human subjects research: is the glass half full, half empty, or the wrong size? Am J Public Health 103:2119-21
Quinn, Sandra Crouse; Butler 3rd, James; Fryer, Craig S et al. (2012) Attributes of researchers and their strategies to recruit minority populations: results of a national survey. Contemp Clin Trials 33:1231-7
Quinn, Sandra Crouse; Garza, Mary A; Butler, James et al. (2012) Improving informed consent with minority participants: results from researcher and community surveys. J Empir Res Hum Res Ethics 7:44-55
Thomas, Stephen B; Quinn, Sandra Crouse; Butler, James et al. (2011) Toward a fourth generation of disparities research to achieve health equity. Annu Rev Public Health 32:399-416