Abstract

This project is composed of two studies on adolescents and youth adults with developmental delay. Study 1 is focused on gathering descriptive data from both adolescents and their parents through the use of questionnaires, standardized scales, and interview techniques. Study 2 is an ethnographic investigation of the adolescents and their families? efforts to organize their daily routines of life. Together, these studies strive to provide a comprehensive picture of what contributes to family and child adaptations and well being through the teen and youth transitions.

  Funding Agency

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Program Projects (P01)
Project #
5P01HD011944-23
Application #
6581873
Study Section
Special Emphasis Panel (ZHD1)
Project Start
2002-05-01
Project End
2003-04-30
Budget Start
Budget End
Support Year
23
Fiscal Year
2002
Total Cost
$230,976
Indirect Cost

  Institution

Name
University of California Los Angeles
Department
Type
DUNS #
119132785
City
Los Angeles
State
CA
Country
United States
Zip Code
90095

  Publications

Weisner, Thomas S; Hay, M Cameron (2015) Practice to research: integrating evidence-based practices with culture and context. Transcult Psychiatry 52:222-43
Skinner, Debra; Weisner, Thomas S (2007) Sociocultural studies of families of children with intellectual disabilities. Ment Retard Dev Disabil Res Rev 13:302-12
Keogh, Barbara K; Bernheimer, Lucinda P; Guthrie, Donald (2004) Children with developmental delays twenty years later: where are they? How are they? Am J Ment Retard 109:219-30
Daley, Tamara C; Weisner, Thomas S (2003) ""I speak a different dialect"": teen explanatory models of difference and disability. Med Anthropol Q 17:25-48
Moes, Doug R; Frea, William D (2002) Contextualized behavioral support in early intervention for children with autism and their families. J Autism Dev Disord 32:519-33
Root, R; Browner, C H (2001) Practices of the pregnant self: compliance with and resistance to prenatal norms. Cult Med Psychiatry 25:195-223
Lieber, E; Chin, D; Nihira, K et al. (2001) Holding on and letting go: identity and acculturation among Chinese immigrants. Cultur Divers Ethnic Minor Psychol 7:247-61
Press, N; Browner, C H (1998) Characteristics of women who refuse an offer of prenatal diagnosis: data from the California maternal serum alpha fetoprotein blood test experience. Am J Med Genet 78:433-45
Clare, L; Garnier, H; Gallimore, R (1998) Parents' developmental expectations and child characteristics: longitudinal study of children with developmental delays and their families. Am J Ment Retard 103:117-29
Kernan, K T; Sabsay, S (1996) Linguistic and cognitive ability of adults with Down syndrome and mental retardation of unknown etiology. J Commun Disord 29:401-21;quiz 422

Showing the most recent 10 out of 34 publications