Researchers have an obligation to inform participants in research of the risks of harm to which they may be exposed as well as of any potential benefits, and to do so in ways that facilitate comprehension of the information presented. This project uses laboratory research, Web-based experiments, tests of informed consent statements with representative samples of the population, and a validation survey to answer the questions such as the following: What risk of disclosure is the public willing to accept? Is disclosure of some kinds of information considered more harmful than others? Are some intruders into the data perceived as more harmful than others? Do people perceive relationships between expected risk of harm on the one hand, and magnitude of harm and likelihood of disclosure on the other, in a manner consistent with the mathematical implications of those terms? How can researchers accurately inform participants about disclosure risks without unnecessarily deterring their participation? Our formulation of these research questions will be guided by the findings of the Project investigating statistical disclosure risks and limitations.
| Couper, Mick P; Singer, Eleanor (2013) Informed Consent for Web Paradata Use. Surv Res Methods 7:57-67 |
| Carroll, Tamar W; Gutmann, Myron P (2011) The limits of autonomy: the Belmont Report and the history of childhood. J Hist Med Allied Sci 66:82-115 |
| Couper, Mick P; Singer, Eleanor; Conrad, Frederick G et al. (2010) Experimental Studies of Disclosure Risk, Disclosure Harm, Topic Sensitivity, and Survey Participation. J Off Stat 26:287-300 |
| An, Di; Little, Roderick J A; McNally, James W (2010) A multiple imputation approach to disclosure limitation for high-age individuals in longitudinal studies. Stat Med 29:1769-78 |
| Singer, Eleanor; Couper, Mick P (2010) Communicating disclosure risk in informed consent statements. J Empir Res Hum Res Ethics 5:1-8 |
| Lazer, David; Pentland, Alex; Adamic, Lada et al. (2009) Social science. Computational social science. Science 323:721-3 |
| Couper, Mick P; Singer, Eleanor (2009) The role of numeracy in informed consent for surveys. J Empir Res Hum Res Ethics 4:17-26 |
| Singer, Eleanor; Couper, Mick P (2008) Do incentives exert undue influence on survey participation? Experimental evidence. J Empir Res Hum Res Ethics 3:49-56 |
| Gutmann, Myron; Witkowski, Kristine; Colyer, Corey et al. (2008) Providing Spatial Data for Secondary Analysis: Issues and Current Practices relating to Confidentiality. Popul Res Policy Rev 27:639-665 |
| VanWey, Leah K; Rindfuss, Ronald R; Gutmann, Myron P et al. (2005) Confidentiality and spatially explicit data: concerns and challenges. Proc Natl Acad Sci U S A 102:15337-42 |
