American Indians (AI) suffer some of the greatest cancer-related health disparities in the United States and are some of the least likely to participate in medical research. Barriers to participation include mistrust of the medical system, limited access to care, and limited culturally-appropriate resources. Effective research programs in AI communities often rely on a collaborative network of community and academic organizations, using community-based participatory research (CBPR) methods. A strong CBPR team based in the AI community and focused on reducing their disproportionate burden of disease has developed over the past four years at the University of Kansas Medical Center, the Program in American Indian Community Health. Our partnership with community organizations has been so successful that we have now formally created an alliance of partners, including tribes, community organizations, academic institutions, and corporations/government agencies, the American Indian Health Research and Education Alliance (AIHREA). We share a long-term goal of reducing health disparities in Al communities through quality participatory research. The primary goals of the Community Engagement Core are to ensure fidelity to the principles of CBPR and to ensure the rigor and validity of the qualitative research conducted through the CPC-AIHD. Our secondary goal is to ensure dissemination of research results, both positive and negative, to the community. The Community Engagement Core will address the following specific aims: 1) To monitor research conducted within the CPC-AIHD for adherence to the principles of CBPR;2) To maintain longitudinal CABs to guide center activities;3) To create a newsletter and an interactive web site for community members and researchers to communicate, disseminate information, and aid in recruitment;4) To hold community research forums annually to bring researchers and community members together;5) To bring 4 high school students, 4 undergraduate college students, and 4 graduate/medical students into research through our youth ambassadors programs in each year;6) To provide rigorous qualitative data collection and analysis for all studies conducted in the AIHREA-CCR;and 7) To provide guidance on qualitative and formative research techniques and study design to all researchers associated with the CPC-AIHD.

Public Health Relevance

The Community Engagement Core for the CPC-AIHD will bring together researchers and community members to address cancer-related health disparities among Al using culturally-appropriate methods and community outreach. AI suffer some of the greatest cancer-related health disparities in the US and are among the least likely to participate in medical research due to historic issues of mistrust. Multiple researchers have identified CBPR as the appropriate method to bring Al into medical research.

National Institute of Health (NIH)
National Institute on Minority Health and Health Disparities (NIMHD)
Exploratory Grants (P20)
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Special Emphasis Panel (ZMD1)
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University of Kansas
Kansas City
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Pacheco, Christina M; Wellever, Anthony; Nazir, Niaman et al. (2018) Clearing the air: American Indian tribal college students' exposure to second hand smoke & attitudes towards smoke free campus policies. J Am Coll Health 66:133-140
Berryhill, Kelly; Hale, Jason; Chase, Brian et al. (2018) Food Security and Diet Among American Indians in the Midwest. J Community Health 43:901-907
Daley, Christine M; Hale, Jason W; Berryhill, Kelly et al. (2017) Diabetes Self-Management Behaviors among American Indians in the Midwestern United States. ARC J Diabetes Endocrinol 3:34-41
Rollins, Kathryn; Jd, Christina M Pacheco; Daley, Sean M et al. (2017) American Indian Tribal College Student's Knowledge, Attitudes and Beliefs about Recreational and Traditional Tobacco Use. Juniper Online J Public Health 2:
Allenbrand, Ryan; Barnes, Charles S; Mohammed, Mubeen et al. (2017) Comparison of allergens collected from furnace filters and vacuum floor dust. Ann Allergy Asthma Immunol 118:108-109
Rollins, Kathryn; Lewis, Charley; Goeckner, Ryan et al. (2017) American Indian Knowledge, Attitudes, and Beliefs About Smokeless Tobacco: A Comparison of Two Focus Group Studies. J Community Health 42:1133-1140
Wick, Jo; Berry, Scott M; Yeh, Hung-Wen et al. (2017) A novel evaluation of optimality for randomized controlled trials. J Biopharm Stat 27:659-672
Garrard, Lili; Price, Larry R; Bott, Marjorie J et al. (2016) A novel method for expediting the development of patient-reported outcome measures and an evaluation across several populations. Appl Psychol Meas 40:455-468
Choi, Won S; Nazir, Niaman; Pacheco, Christina M et al. (2016) Recruitment and Baseline Characteristics of American Indian Tribal College Students Participating in a Tribal College Tobacco and Behavioral Survey. Nicotine Tob Res 18:1488-93
Filippi, Melissa K; Perdue, David G; Hester, Christina et al. (2016) COLORECTAL CANCER SCREENING PRACTICES AMONG THREE AMERICAN INDIAN COMMUNITIES IN MINNESOTA. J Cult Divers 23:21-7

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