The National Information Resource on Ethics & Human Genetics (NIREHG), in cooperation with the National Reference Center for Bioethics Literature (NRCBL, funded by a contract with the National Library of Medicine and other sources) and with the consultation of an Advisory Board of subject matter experts, proposes: ? ? 1. To continue the identification, collection, and cataloging of materials on the ethical, legal, and social implications (ELSI) of genetic research; ? ? 2. To support the retrieval of these materials in the following bibliographic databases: Genetics and Ethics, ETHX on the Web, PubMed, and LOCATORplus; (all bibliographic records that refer to documents produced with funding from the National Human Genome Research Institute (NHGRI) will be tagged); ? ? 3. To provide access to the cited materials by offering links to full-text sources on the Internet, when available; offering a NIREHG document delivery service; and suggesting other sources for digital access or photocopies. ? ? 4. To continue to develop the digital holdings of NIREHG; ? ? 5. To maintain and further develop the NIREHG Web site by updating the Web editions of the Scope Notes on ELSI topics; featuring QuickBibs on major genetics topics; and enhancing access to web information at selected sites by using webcrawler software; ? ? 6. To provide reference assistance and training in database usage in the library, via a toll-free number, in print, at conferences, in the classroom, and via the Web; and ? ? 7. To publicize NIREHG's collections and services at appropriate conferences and via the media. ? ? ?
| Walters, LeRoy (2012) Genetics and bioethics: how our thinking has changed since 1969. Theor Med Bioeth 33:83-95 |
| Darragh, Martina; Gray, Harriet; McCarrick, Pat Milmoe et al. (2002) Searching across boundaries: national information resource on ethics and human genetics. Kennedy Inst Ethics J 12:103-13 |
| Coutts, M C; McCarrick, P M (1995) Scope Note 28. Eugenics. Kennedy Inst Ethics J 5:163-78 |
