Cancer produces profound social, interpersonal, psychological and communication challenges. The severity, sudden onset, and complexity of these challenges tax traditional health systems. The newly diagnosed cancer patient needs: clear and timely information, help in making decisions, emotional support, and effective coping skills. Modem communication technologies have the potential to provide interventions that target these distinct goals: the provision of information, social support or new/improved skills. Unfortunately, there is virtually no research establishing the relative worth of these goals, how well the different types of interventions accomplish their goals, and how the interventions work overall and for specific patient types. CHESS is an innovative technology that provides information, social support and skills training. Previous randomized trials of CHESS found improved patient welfare including quality of life (QOL), participation in decisions and health services use. But, as with other communication technologies, little is known about which strategies produce those benefits. Do patients do better with a broad array of expensive services, or will benefit result from fewer, less costly services? Answers will reveal factors that make communication technologies effective and how to enhance them. This controlled trial will examine whether breast cancer patient outcomes change as different types of conceptually distinct CHESS services (information, social support, and skills training) are systematically added to a patient's treatment resources. Process analyses will identify specific CHESS effects responsible for global outcomes such as improved QOL. CHESS is an ideal platform for investigating which communication treatments are effective given substantial evidence that something in CHESS is effective - we just do not know what it is, or how it works. Newly-diagnosed breast cancer patients (N = 360) will be randomly assigned to four intervention groups: a) CHESS providing information, social support and skills training (full CHESS), b) CHESS social support and information, c) CHESS information only, or d) a control group receiving usual care+interact access. Subjects will be tracked for 56 weeks to assess health, adjustment, and relational outcomes. This research will help reveal the types of treatments that are most helpful to cancer patients and how they work.

Agency
National Institute of Health (NIH)
Institute
National Cancer Institute (NCI)
Type
Specialized Center (P50)
Project #
1P50CA095817-01A1
Application #
6825430
Study Section
Special Emphasis Panel (ZCA1)
Project Start
2003-09-30
Project End
2008-08-31
Budget Start
Budget End
Support Year
1
Fiscal Year
2003
Total Cost
Indirect Cost
Name
University of Wisconsin Madison
Department
Type
DUNS #
161202122
City
Madison
State
WI
Country
United States
Zip Code
53715
Mayer, Deborah K; Landucci, Gina; Awoyinka, Lola et al. (2018) SurvivorCHESS to increase physical activity in colon cancer survivors: can we get them moving? J Cancer Surviv 12:82-94
Han, Jeong Yeob; Hawkins, Robert; Baker, Timothy et al. (2017) How Cancer Patients Use and Benefit from an Interactive Cancer Communication System. J Health Commun 22:792-799
Gustafson, David H; DuBenske, Lori L; Atwood, Amy K et al. (2017) Reducing Symptom Distress in Patients With Advanced Cancer Using an e-Alert System for Caregivers: Pooled Analysis of Two Randomized Clinical Trials. J Med Internet Res 19:e354
Singh, Sarguni; Cortez, Dagoberto; Maynard, Douglas et al. (2017) Characterizing the Nature of Scan Results Discussions: Insights Into Why Patients Misunderstand Their Prognosis. J Oncol Pract 13:e231-e239
Kim, Eunkyung; Scheufele, Dietram A; Han, Jeong Yeob et al. (2017) Opinion Leaders in Online Cancer Support Groups: An Investigation of Their Antecedents and Consequences. Health Commun 32:142-151
Namkoong, Kang; Shah, Dhavan V; Gustafson, David H (2017) Offline Social Relationships and Online Cancer Communication: Effects of Social and Family Support on Online Social Network Building. Health Commun 32:1422-1429
Namkoong, Kang; Shah, Dhavan V; McLaughlin, Bryan et al. (2017) Expression and Reception: An Analytic Method for Assessing Message Production and Consumption in CMC. Commun Methods Meas 11:153-172
Kim, Sojung Claire; Shaw, Bret R; Shah, Dhavan V et al. (2017) Interactivity, Presence, and Targeted Patient Care: Mapping e-Health Intervention Effects Over Time for Cancer Patients with Depression. Health Commun :1-10
Li, Charles; Yan, Xianghe; Lillehoj, Hyun S (2017) Complete genome sequences of Clostridium perfringens Del1 strain isolated from chickens affected by necrotic enteritis. Gut Pathog 9:69
Maynard, Douglas W; Cortez, Dagoberto; Campbell, Toby C (2016) 'End of life' conversations, appreciation sequences, and the interaction order in cancer clinics. Patient Educ Couns 99:92-100

Showing the most recent 10 out of 56 publications