Interactive cancer communication systems (ICCS) have great potential to provide cancer patients with accurate information on their diseases and treatments in a cost-effective manner. While data suggest that ICCS may benefit cancer patients, important knowledge gaps remain: gaps that should be addressed before ICCS are more broadly incorporated into healthcare. Data are needed on ICCS effects on such outcomes as patients'emotional well being, on clinicians'reactions to clinical encounters, and on healthcare utilization and cost-effectiveness. In addition, almost all data on ICCS come from efficacy trials. Little is known about how much ICCS will be used, what their effects will be, and how to foster their use in real world healthcare contexts. This proposal describes a study that will be conducted within the Kaiser Permanente Northwest (KPNW) healthcare system. Breast cancer patients will be informed of the availability of a KPNW Breast Cancer Information website. The number of patients visiting that site will reflect interest in KPNW internet breast cancer resources and potential reach of an ICCS within the KPNW population. After entering the website, women (N=600) will be offered the opportunity to join a 2 X 2 randomized trial in which they can volunteer online to be randomized to either: (1.) a Basic ICCS that provides static information on KPNW resources and articles on breast cancer, or (2) an Enhanced ICCS condition that comprises those same static resources + CHESS (an ICCS that has benefited breast cancer patients in efficacy trials). CHESS availability will be crossed with a Prompt condition in which some women will have ICCS use prompted by letters and phone calls from KPNW while others will not. Outcome measures will include amount of ICCS use and women's ratings of cancer information competence, perceived social support, and emotional well being, Other outcomes will include healthcare utilization, cost-effectiveness, and clinician ratings of healthcare visits. The proposed research should provide information about the business and clinical cases for a comprehensive ICCS in the context of real world use for cancer care. This center grant focuses on CHESS, a computer program that is designed to give support and information to women with breast cancer. This """"""""Effectiveness"""""""" study will show how CHESS works in real world healthcare setting, yielding new data on women's use of CHESS, whether CHESS helps women feel better informed and less anxious, and whether it reduces healthcare costs.

Agency
National Institute of Health (NIH)
Institute
National Cancer Institute (NCI)
Type
Specialized Center (P50)
Project #
5P50CA095817-08
Application #
8137866
Study Section
Special Emphasis Panel (ZCA1)
Project Start
Project End
Budget Start
2010-09-01
Budget End
2011-08-31
Support Year
8
Fiscal Year
2010
Total Cost
$586,940
Indirect Cost
Name
University of Wisconsin Madison
Department
Type
DUNS #
161202122
City
Madison
State
WI
Country
United States
Zip Code
53715
Mayer, Deborah K; Landucci, Gina; Awoyinka, Lola et al. (2018) SurvivorCHESS to increase physical activity in colon cancer survivors: can we get them moving? J Cancer Surviv 12:82-94
Han, Jeong Yeob; Hawkins, Robert; Baker, Timothy et al. (2017) How Cancer Patients Use and Benefit from an Interactive Cancer Communication System. J Health Commun 22:792-799
Gustafson, David H; DuBenske, Lori L; Atwood, Amy K et al. (2017) Reducing Symptom Distress in Patients With Advanced Cancer Using an e-Alert System for Caregivers: Pooled Analysis of Two Randomized Clinical Trials. J Med Internet Res 19:e354
Singh, Sarguni; Cortez, Dagoberto; Maynard, Douglas et al. (2017) Characterizing the Nature of Scan Results Discussions: Insights Into Why Patients Misunderstand Their Prognosis. J Oncol Pract 13:e231-e239
Kim, Eunkyung; Scheufele, Dietram A; Han, Jeong Yeob et al. (2017) Opinion Leaders in Online Cancer Support Groups: An Investigation of Their Antecedents and Consequences. Health Commun 32:142-151
Namkoong, Kang; Shah, Dhavan V; Gustafson, David H (2017) Offline Social Relationships and Online Cancer Communication: Effects of Social and Family Support on Online Social Network Building. Health Commun 32:1422-1429
Namkoong, Kang; Shah, Dhavan V; McLaughlin, Bryan et al. (2017) Expression and Reception: An Analytic Method for Assessing Message Production and Consumption in CMC. Commun Methods Meas 11:153-172
Kim, Sojung Claire; Shaw, Bret R; Shah, Dhavan V et al. (2017) Interactivity, Presence, and Targeted Patient Care: Mapping e-Health Intervention Effects Over Time for Cancer Patients with Depression. Health Commun :1-10
Li, Charles; Yan, Xianghe; Lillehoj, Hyun S (2017) Complete genome sequences of Clostridium perfringens Del1 strain isolated from chickens affected by necrotic enteritis. Gut Pathog 9:69
Maynard, Douglas W; Cortez, Dagoberto; Campbell, Toby C (2016) 'End of life' conversations, appreciation sequences, and the interaction order in cancer clinics. Patient Educ Couns 99:92-100

Showing the most recent 10 out of 56 publications