Women in the criminal justice system are four-five times as likely to have cervical cancer compared to non- incarcerated women. In our previous research, we found that the most important contributor to cervical cancer risk, and perhaps lack of follow-up, is incarcerated women's low health literacy about broader reproductive health issues. Until we effectively address incarcerated women's unique reproductive health literacy needs, the cervical cancer health disparity between incarcerated and non-incarcerated women will persist. The objective of this study is to assess the effectiveness of a sexual health empowerment (SHE Project) intervention to improve cervical health knowledge, reduce barriers to screening that are related to beliefs about cervical cancer, improve self-efficacy for navigatin providers and health care systems, and ultimately work towards preventing cervical cancer. This objective is responsive to PAR-10-133 in that it develops an intervention strategy to address health literacy and broader health outcomes in a vulnerable population. To meet the objectives of this study, we propose to assess the impact of a sexual health empowerment intervention (SHE Project) on cervical health knowledge; barriers to screening that are related to beliefs about cervical cancer, and self-efficacy for screening and follow-up among women leaving jail. More specifically, we will conduct a pre- and post-intervention assessment from baseline to the end of a weeklong intervention using a wait-list control design. Next, we will use a three-year observational study design employing both survey and ethnographic methods for follow-up, to understand how knowledge, beliefs, self-efficacy, and other factors change post-release cervical health prevention behaviors over time. This approach will allow us to observe the extent to which women translate, if at all, increased knowledge, reduced barriers, and increased self-efficacy into practice during clinical encounters, or if other factors explain health behaviors ove time. The public health impact of this study is its potential to reduce cervical cancer morbidity and mortality for this high risk and vulnerable group of women. Our development of an effective and easily disseminated health literacy intervention that can be adapted to many health conditions and broader cancer prevention efforts in institutionalized populations (jails, prisons, community corrections, military institutions) will have an impact on public health, and also on the science of developing effective health literacy interventions.

Public Health Relevance

The public health impact of this study is its potential to reduce cervical cancer morbidity and mortality for the high risk and vulnerable group of women in the criminal justice system. An empowerment approach to health literacy interventions will also have an impact on broader reproductive health problems in this high risk population. Further, the development of an effective and easily disseminated health literacy intervention that can be adapted to many health conditions and broader cancer prevention efforts in institutionalized populations (jails, prisons, community corrections, military institutions) will have an impact on public health, and also on the science of developing effective health literacy interventions.

Agency
National Institute of Health (NIH)
Institute
National Cancer Institute (NCI)
Type
Research Project (R01)
Project #
5R01CA181047-03
Application #
9040909
Study Section
Special Emphasis Panel (ZRG1)
Program Officer
Chou, Wen-Ying
Project Start
2014-04-01
Project End
2019-03-31
Budget Start
2016-04-01
Budget End
2017-03-31
Support Year
3
Fiscal Year
2016
Total Cost
Indirect Cost
Name
University of Kansas
Department
Public Health & Prev Medicine
Type
Schools of Medicine
DUNS #
016060860
City
Kansas City
State
KS
Country
United States
Zip Code
66160
Pickett, Michelle L; Allison, Molly; Twist, Katelyn et al. (2018) Breast Cancer Risk Among Women in Jail. Biores Open Access 7:139-144
Kelly, Patricia J; Allison, Molly; Ramaswamy, Megha (2018) Cervical cancer screening among incarcerated women. PLoS One 13:e0199220
Emerson, Amanda M (2018) Strategizing and Fatalizing: Self and Other in the Trauma Narratives of Justice-Involved Women. Qual Health Res 28:873-887
Kelly, Patricia J; Emerson, Amanda; Fair, Chelsea et al. (2018) Assessing fidelity: balancing methodology and reality in jail interventions. BMC Womens Health 18:127
Emerson, Amanda Marie (2018) Narrative Inquiry Into Shelter-Seeking by Women With a History of Repeated Incarceration: Research and Nursing Practice Implications. ANS Adv Nurs Sci 41:260-274
Kelly, Patricia J; Ramaswamy, Megha (2017) Closing the cervical cancer disparity gap. Public Health Nurs 34:195-196
Ramaswamy, Megha; Lee, Jaehoon; Wickliffe, Joi et al. (2017) Impact of a brief intervention on cervical health literacy: A waitlist control study with jailed women. Prev Med Rep 6:314-321
Kelly, Patricia J; Hunter, Jennifer; Daily, Elizabeth Brett et al. (2017) Challenges to Pap Smear Follow-up among Women in the Criminal Justice System. J Community Health 42:15-20
Ramaswamy, Megha; Kelly, Patricia J (2015) ""The Vagina is a Very Tricky Little Thing Down There"": Cervical Health Literacy among Incarcerated Women. J Health Care Poor Underserved 26:1265-85