It is estimated that 3-5 percent of children suffer from fecal incontinence. One of the most effective ways of treating encopresis is through Enhanced Toilet Training (ETT). ETT is twice as effective as intensive medial management alone at 3, 6, and 12-month follow-up when delivered by skilled and knowledgeable clinicians. Although this finding is a clear indication that ETT can be effective in treating encopretic children, there are 5 major barriers to its implementation: 1) availability of a knowledgeable and skilled clinician, 2) parental acceptance of referral to a mental health professional, 3) expense for this available service, 4) burden of time and distance to access such specialty services, and 5) child resistance to disclosure of embarrassing material. We have attempted to circumvent these barriers by operationalizing the treatment components of ETT in creating an interactive Internet-based program, which we demonstrated significantly enhances treatment provided by primary care physicians. We have developed a theoretical model for therapeutic behavior change achieved by web-based interventions, and completed a feasibility study demonstrating the acceptance, function and effectiveness of such an intervention for children with encopresis. We propose a 5-year, 4-phase project: Expert Optimization Phase 1 will bring together clinical and website experts to identify optimal web and treatment elements as well as issues in need of experimental investigation. Experimental Optimization Phase 2 (years 1-2) will investigate how to enhance internet-based interventions with a series of experimental investigations. Clinical Trial Phase 3 (years 3-4) will evaluate the relative benefit of adding the internet treatment to clinical services provided by generalists and specialists in the fields of medicine and mental health. Cost-Benefit/ Dissemination Phase 4 (Years 4-5) will investigate the relative long-term benefits of adding such an internet based intervention to professional interventions, to determine impact on symptom improvement, generalization of symptom impact, relapse prevention, quality of life, and cost-effectiveness. Phase 4 will also assess to what extent the program is disseminated world wide when made generally available on the Internet. After 5 years we will have documented basic elements and dissemination patters of web-based pediatric behavior change programs generally, and, in particular Enhanced Toilet Training.

Agency
National Institute of Health (NIH)
Institute
Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD)
Type
Research Project (R01)
Project #
5R01HD028160-12
Application #
6641249
Study Section
Special Emphasis Panel (ZRG1-RPHB-2 (01))
Program Officer
Haverkos, Lynne
Project Start
1992-04-01
Project End
2006-06-30
Budget Start
2003-07-01
Budget End
2004-06-30
Support Year
12
Fiscal Year
2003
Total Cost
$402,988
Indirect Cost
Name
University of Virginia
Department
Psychiatry
Type
Schools of Medicine
DUNS #
065391526
City
Charlottesville
State
VA
Country
United States
Zip Code
22904
Ritterband, Lee M; Thorndike, Frances P; Lord, Holly R et al. (2013) An RCT of an Internet Intervention for Pediatric Encopresis with One Year Follow-Up. Clin Pract Pediatr Psychol 1:68-80
Magee, Joshua C; Ritterband, Lee M; Thorndike, Frances P et al. (2009) Exploring the relationship between parental worry about their children's health and usage of an internet intervention for pediatric encopresis. J Pediatr Psychol 34:530-8
Ritterband, Lee M; Thorndike, Frances P; Cox, Daniel J et al. (2009) A behavior change model for internet interventions. Ann Behav Med 38:18-27
Ritterband, Lee M; Ardalan, Kaveh; Thorndike, Frances P et al. (2008) Real world use of an Internet intervention for pediatric encopresis. J Med Internet Res 10:e16
Burket, Roger C; Cox, Daniel J; Tam, Anita P et al. (2006) Does ""stubbornness"" have a role in pediatric constipation? J Dev Behav Pediatr 27:106-11
Ritterband, Lee M; Borowitz, Stephen; Cox, Daniel J et al. (2005) Using the internet to provide information prescriptions. Pediatrics 116:e643-7
Borowitz, Stephen M; Cox, Daniel J; Kovatchev, Boris et al. (2005) Treatment of childhood constipation by primary care physicians: efficacy and predictors of outcome. Pediatrics 115:873-7
Borowitz, Stephen M; Cox, Daniel J; Tam, Anita et al. (2003) Precipitants of constipation during early childhood. J Am Board Fam Pract 16:213-8
Cox, Daniel J; Ritterband, Lee M; Quillian, Warren et al. (2003) Assessment of behavioral mechanisms maintaining encopresis: Virginia Encopresis-Constipation Apperception Test. J Pediatr Psychol 28:375-82
Ritterband, Lee M; Cox, Daniel J; Walker, Lynn S et al. (2003) An Internet intervention as adjunctive therapy for pediatric encopresis. J Consult Clin Psychol 71:910-7

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