This renewal project, conducted by a consortium of three universities (University of Michigan, Michigan State University and Howard University) builds upon the initial project which conducted a series of public dialogues developing policy recommendations to guide the use of genome technology related to reproductive decision-making. The renewal project will develop a process for engaging minority populations of diverse socioeconomic levels in the process of rational democratic deliberation on moral and political issues relating to genome research and its resulting technology, and will develop recommendations for laws, professional standards and institutional policies regarding the use and application of genome research and technology. 15 African American and Latino community-based organizations in Michigan and Washington/Baltimore will identify participants for focus groups and for a series of five dialogue sessions held in the """"""""home"""""""" communities. Focus groups will identify a menu of issues of concern, and dialogue sessions will discuss the issues and develop recommendations. Regional community policy meetings attended by all group participants will convert dialogue group output into specific policy recommendations. Both the recommendations and the process used in their development will be analyzed, with dissemination of recommendations and lessons learned to the public, policy-makers, health educators and practitioners. A Community Advisory Board, with representation from community-based organizations participating in the project, will provide input to all project phases. Qualitative and quantitative methods will be used to evaluate both process and outcome, with comparisons to the initial project.

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Research Project (R01)
Project #
2R01HG001005-04
Application #
2762453
Study Section
Special Emphasis Panel (ZRG2-BIOL-1 (02))
Program Officer
Boyer, Joy
Project Start
1995-08-18
Project End
2001-11-30
Budget Start
1999-05-01
Budget End
1999-11-30
Support Year
4
Fiscal Year
1999
Total Cost
Indirect Cost
Name
University of Michigan Ann Arbor
Department
Administration
Type
Schools of Public Health
DUNS #
791277940
City
Ann Arbor
State
MI
Country
United States
Zip Code
48109
Terry, Sharon F; Christensen, Kurt D; Metosky, Susan et al. (2012) Community engagement about genetic variation research. Popul Health Manag 15:78-89
Bonham, Vence L; Citrin, Toby; Modell, Stephen M et al. (2009) Community-based dialogue: engaging communities of color in the United states' genetics policy conversation. J Health Polit Policy Law 34:325-59
Schulz, Amy; Caldwell, Cleopatra; Foster, Sarah (2003) ""What are they going to do with the information?"" Latino/Latina and African American perspectives on the Human Genome Project. Health Educ Behav 30:151-69