This project is a contribution to the """"""""Ethical, Legal and Social Implications"""""""" (ELSl) Program of the Human Genome Project (HGP). The ELSl Program was originated, in part, to assure the public that the study of modern genetics would not make the horrible mistakes of the eugenic programs of the early twentieth century. For the most part, it has been successful. But one group still perceives the HGP as largely eugenic, and contrary to the group's interest. Disability Rights advocates continue to be skeptical of the HGP, and continue to consider it as eugenic. Most of the bioethicists who work within the ELSl Program reject the Disability Rights argument. And, while the Disability Rights argument may indeed be wrong, so long as their interests are merely rejected, the Disability Rights advocates will continue to consider the HGP contrary to their interests. This project will attempt to ascertain the conceptual foundations of the clash between bioethicists and the Disability Rights advocates who are skeptical of the HGP. It will carefully study the bibiographic history of the debate and its rationale on both sides. A number of aspects of the conflict have been identified. These include 1) differing view on the concept of the quality of life, 2) differences on what counts as """"""""eugenics,"""""""" 3) ways of analyzing the attribution of causality in complex causal contexts, and 4) the possibility of regarding the Disability Rights advocacy as expressive of a cultural ethics, rather than a moral assertion to be refuted by bioethicists defending the HGP. The long term goal of the project will be to produce a book on these conflicts and hopefully on their resolution. The immediate goal is to document the methodological core of each side of the debate, and examine how data and concepts from other fields might be relevant to a resolution.

Agency
National Institute of Health (NIH)
Institute
National Institute of General Medical Sciences (NIGMS)
Type
Minority Biomedical Research Support - MBRS (S06)
Project #
2S06GM008073-33
Application #
6821126
Study Section
Minority Programs Review Committee (MPRC)
Project Start
2004-07-01
Project End
2007-06-30
Budget Start
2004-07-01
Budget End
2005-06-30
Support Year
33
Fiscal Year
2004
Total Cost
$35,000
Indirect Cost
Name
University of Hawaii at Hilo
Department
Type
DUNS #
195738039
City
Hilo
State
HI
Country
United States
Zip Code
96720
Mishra, Gita D; Chung, Hsin-Fang; Pandeya, Nirmala et al. (2016) The InterLACE study: Design, data harmonization and characteristics across 20 studies on women's health. Maturitas 92:176-185
Morrison, Lynn A; Brown, Daniel E; Sievert, Lynnette L et al. (2014) Voices from the Hilo Women's Health Study: talking story about menopause. Health Care Women Int 35:529-48
Sievert, Lynnette Leidy; Murphy, Lorna; Morrison, Lynn A et al. (2013) Age at menopause and determinants of hysterectomy and menopause in a multi-ethnic community: the Hilo Women's Health Study. Maturitas 76:334-41
Van Berge-Landry, Helene; James, Gary D; Brown, Daniel E (2013) Relationships between diurnal changes in blood pressure and catecholamines among Filipino-American and European-American women. Am J Hum Biol 25:431-3
Reza, Angela; Sievert, Lynnette Leidy; Rahberg, Nichole et al. (2012) Prevalence and determinants of headaches in Hawaii: the Hilo Women's Health Study. Ann Hum Biol 39:305-14
Stringer, Kate; Kerpelman, Jennifer; Skorikov, Vladimir (2012) A longitudinal examination of career preparation and adjustment during the transition from high school. Dev Psychol 48:1343-54
Brown, Daniel E; Sievert, Lynnette L; Morrison, Lynn A et al. (2011) Relationship between hot flashes and ambulatory blood pressure: the Hilo women's health study. Psychosom Med 73:166-72
Morrison, Lynn A; Larkspur, Louona; Calibuso, Marites J et al. (2010) Women's attitudes about menstruation and associated health and behavioral characteristics. Am J Health Behav 34:90-100
Morrison, Lynn A; Sievert, Lynnette L; Brown, Daniel E et al. (2010) Relationships between menstrual and menopausal attitudes and associated demographic and health characteristics: the Hilo Women's Health Study. Women Health 50:397-413
Sievert, Lynnette L; Reza, Angela; Mills, Phoebe et al. (2010) Diurnal rhythm and concordance between objective and subjective hot flashes: the Hilo Women's Health Study. Menopause 17:471-9

Showing the most recent 10 out of 23 publications